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The Advocacy brief – Issue #4 June 11th

We will not be silenced as we fight for access to life-saving drugs. Background: CF Voices under fire from federal agency meant to serve them…

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Getting Trikafta Saved my Life

Samantha Roy, lives with cystic fibrosis, was granted compassionate access to Trikafta after her health declined considerably as a young adult. She shares how this…

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David Van Beers

David Van Beers: A Legacy of Hope

David Van Beers grew up in a family of six living on a farm in Ontario, the family had a busy household with four boys. David was the eldest, and he was born with cystic fibrosis (CF). Despite this diagnosis his childhood was similar to any other child; playing sports, enjoying games with friends – the only difference was the extra precautions and treatments he needed to do because of his CF.

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The Advocacy Brief – Issue #3 (May 18)

Welcome to your May 18th 2021 issue of The Advocacy Brief. Before we jump into the latest advocacy updates, including news of the review of…

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Four Ways You Can Help Get Access to Life-Saving CF Medicines Now

It’s CF Awareness Month! Help Canadians with cystic fibrosis access the miracle drug, Trikafta, ASAP!. From the #CFcantwait Provincial Meeting Challenge, to the Walk to…

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The Advocacy Brief – Issue #2 (April 27)

Access to Modulators in Canada Updates The CF Can’t Wait Provincial Meeting Challenge is off to a great start Advocates across Canada have already held…

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Sandy Stevens

Advocate Spotlight: Sandy Stevens

1. Name: Sandy Stevens 2. Province: Alberta 3. Connection to CF: Daughter with CF 4. Years advocating: 3+ years 5. Why did you get involved…

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The importance of organ donors, from a recipient’s perspective

Kadeem Morgan was diagnosed with cystic fibrosis shortly after his first birthday, news that was devastating for his close-knit family. Despite living with cystic fibrosis, he grew up enjoying his childhood, embracing his family’s love of food and music.

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Cardona Lab

Going Further for Cystic Fibrosis Research

Under the mentorship of Dr. Silvia T. Cardona, professor and Associate Head of Microbiology (Graduate Affairs) at the University of Manitoba, we are a small…

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