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Volunteer Advocate
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Archive for August, 2017

Collaborating with the Cystic Fibrosis Trust

International partners Cystic Fibrosis Canada and the Cystic Fibrosis Trust are thrilled to announce an international collaboration on the paediatric feasibility study for the Cystic…

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Why Canada Needs A Rare Disease Strategy

Approximately, one in every 3,600 children born in Canada has CF, making CF a rare disease. While each rare disease affects only a very few…

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CONNECTIONS SUMMER/FALL 2017

Cystic Fibrosis Canada is proud to publish the Summer/Fall 2017 edition of Connections magazine! It is published both online and in print. This edition is…

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2017 Cystic Fibrosis Canada National Award Recipients

It is only through the commitment, courage and passion of our outstanding volunteers that we continue to improve the lives of Canadians living with cystic…

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Beyond My Battle

Nell and Martel are two friends with chronic illness who were inspired to start an online support group, Beyond My Battle, for other people living…

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Finding my role in the CF Community

Hello, my name is Jim Best and I am a 34-year-old living with Cystic Fibrosis. I am sitting and writing this realizing how hard it…

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Advocating for better access to medications

Most Canadians don’t think about or need to know how a new medicine is discovered, developed, approved and funded. For Canadians with rare disorders, however,…

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Advocating for Cystic Fibrosis

Cystic fibrosis (CF) is the most common fatal genetic disease affecting Canadian children and young adults. Currently, there is no cure. Approximately, one in every…

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Advocating with your CF Team

We’ve been told by doctors, parents, and people living with CF, that one of the largest hurdles in transitioning to adult care is self-advocacy. So…

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