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Archive for December, 2016

The vital impact of research on a community and personal level

Guest post by Miriam Schroeder, CF community member Dr. Valerie Chappe, Associate Professor in the Department of Physiology and Biophysics at Dalhousie University, does groundbreaking…

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Five tips to help you feel your best over the holidays!

Stay on schedule: It can be really tempting around the holidays to break daily patterns. You might eat different foods in different quantities than normal;…

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Greetings from the Volunteer Advisory Committee (VAC)

Ron Anderson and Brian Kerr co-chair the VAC, which represents all Cystic Fibrosis Canada regions. Ron is a former president of the Toronto chapter and…

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Cystic Fibrosis Canada-funded researchers on international team awarded prestigious grant

Two Canadian researchers, John Hanrahan from McGill University and Janet Rossant from the Hospital for Sick Children, are members of a six person international team…

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Digital Health Week: Using technology to assist with transition to adult care

Transitioning from an adolescent to a young adult can be an exciting and challenging time. As people with cystic fibrosis (CF) approach late adolescence and…

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Diabetes awareness month: About cystic fibrosis-related diabetes

November is Diabetes Awareness Month and November 14 is World Diabetes Day.  For people living with cystic fibrosis (CF), diabetes can be an unwelcome complication,…

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Help for new parents of babies with CF: Part 2 of 2

Many studies have shown that lung function is better in individuals with cystic fibrosis when they are well nourished. Good nutrition begins at birth, continues…

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Help for new parents of babies with CF: Part 1 of 2

Becoming a parent is life-changing and raising kids already comes with its own ups and downs. Throw a chronic illness into the mix, and things…

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An Update on ORKAMBI

On Monday, we shared with you an update on CADTH’s recommendation that Vertex’s drug ORKAMBI not be reimbursed. The response from the community has been…

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