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Archive for July, 2016

Funding decision for ORKAMBI™ Delayed

The Canadian Agency for Drugs and Technologies in Health (CADTH) announced today that the submission for ORKAMBI™ (lumacaftor/ivacaftor) will be reconsidered at an upcoming meeting…

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Lung Repair in People with Cystic Fibrosis

A team of Cystic Fibrosis Canada-funded researchers led by Dr. Emmanuelle Brochiero from the CHUM Research Centre (CRCHUM) and University of Montreal received a $238,254…

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Spotlight: Nick Plasse

The dedicated members of our community never cease to amaze us! As part of our Spotlight series, we’re pleased to feature some of the hardworking…

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CF Care: Reproductive Health

If you have cystic fibrosis (CF), or have a partner with CF and are considering having children, you may find yourself struggling with several different…

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Advocacy in action: Rae-Anne’s story

My name is Rae-Anne Davidson. I am 28 years old and from Ayers Cliff, Quebec. I was diagnosed with Cystic fibrosis (CF) at the age…

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12 marathons in 15 days: a father runs for CF

From the 15th to the 29th of May, Cédric Bouillon, a father of three children, two of whom have cystic fibrosis (CF), ran 503 km…

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We’re on Instagram!

We’re very excited to announce that our official Instagram account is now live! Connecting with Canadians with cystic fibrosis (CF) is important to us and…

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CF Awareness Day on Parliament Hill

On Tuesday May 10th2016, the Northern and Eastern Ontario Regional staff assembled in our nation’s capital on Parliament Hill for a wonderful day of advocacy…

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Advocacy in Action: Access to a Future

Not only can access to medicine mean life-changing results for those living with a rare disease, it can also make a world of difference for…

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