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Volunteer Advocate
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Archive for June, 2016

Advocacy in Action: Access to a Future

Not only can access to medicine mean life-changing results for those living with a rare disease, it can also make a world of difference for…

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Summer Fun Starts Now

Is it just us, or do the months keep going by faster and faster? With the end of June comes the end of the 2015/16…

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Spotlight: Darryl Hemstreet

The dedicated members of our community never cease to amaze us! As part of our Spotlight series, we’re pleased to feature some of the hardworking…

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CF Care: Parenting & CF

As the school year comes to a close across the country, many parents will soon find themselves spending more time with their children as summer…

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Advocacy in Action: The Human Cost

John* has been taking Orkambi for the last two and a half years, starting as part of the clinical trial, rollover study and now through…

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A Day in My Shoes: Myles Lynch

Myles was diagnosed with cystic fibrosis (CF) when he was just one month old. At 16, Myles received at double lung transplant. Now 18, Myles…

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Spotlight: GearUp4CF Rides

Looking for an interesting and fun way to support CF Canada this summer? If you’re into cycling (or know someone who is), join us this…

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Advocacy in Action: Abby

Starting our Advocacy in Action series is the story of 25-year-old B.C. resident, Abby. Both Abby and her twin sister Simone have cystic fibrosis (CF),…

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ADVOCACY IN ACTION: Access to Medicine

The Drug Approval Process in Canada Getting a drug from a lab all the way to patients who can benefit from it is a long…

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