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Volunteer Advocate
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Archive for June, 2016

ADVOCACY IN ACTION: Access to Medicine

The Drug Approval Process in Canada Getting a drug from a lab all the way to patients who can benefit from it is a long…

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Making CF History: Advocating for Our Community

One of our roles as a non-profit is to advocate for you, our community. Since 1960, we’ve been committed to ensuring people with CF, caregivers…

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Newborn Screening for Cystic Fibrosis in Canada Shows Benefits

Pictured above: Amelia Ann Steeves from Victoria, BC, who was born in the fall of 2011 and diagnosed with CF by newborn screening, shown in…

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Making CF History: Progress in Lung Transplantation

For those with advanced disease, transplantation may be the next step to help regain health. Currently, double-lung, heart-lung and liver transplants are the only definitive…

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A Day in My Shoes: Helen Meinzinger

Volunteers like Helen Meinzinger are the backbone of Cystic Fibrosis Canada. The work of the dedicated individuals who give their time has gotten us where…

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Making CF History: Then and Now

Over the years, we have invested $235 million in research and clinical care for cystic fibrosis in Canada. Since 1960, we’ve progressed by leaps and…

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A Day in My Shoes: Katie and Lauren LePage

Katie and Lauren’s younger brother Marc was diagnosed with cystic fibrosis (CF) just before his first birthday. From that moment on, their family was changed…

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HHRG Guidelines Published in Canadian Respiratory Journal

For the first time, the work of Cystic Fibrosis Canada has been published in a peer reviewed academic journal! An article highlighting the Health Human Resources…

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Making CF History: Walking to Create #AWorldWithoutCF

On May 29, people will join together in communities from coast to coast for the CARSTAR Walk to Make CF History to help us work…

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