It’s back to school season! Going to school is an exciting time for children, and living with CF should not keep any child from that experience. For CF parents and caregivers, this season can be a stressful and overwhelming period, especially if your child is just beginning primary school. A key component in facilitating this transition is ensuring you communicate with the school staff and teachers, and making sure that they have access to information about cystic fibrosis. We are sharing some school resources below that can help you make the transition into this season smooth for your child with CF.
Educational material to help manage the relationship with the school:
- School Toolkit: a guide for parents and teachers
- Education and CF brochure
- The Elementary School Years: A Parent’s Guide to Healthy Living With Cystic Fibrosis (US resource)
Quick tip: The Infection Prevention and Control Policy
It is a good idea to make sure that the school your child is attending is aware of the infection prevention and control policy. This document can provide extra information about what healthcare professionals recommend regarding CF and infection prevention and control.
The following resources can help school teachers and their students better understand cystic fibrosis.
Visit your local library or check online to learn more about each book and the target age group. For instance, we know that Cadberry’s Letters is a pre-school age read that helps explain CF.
- Go Lungs Go! By Stephanie East
- Little Brave One by Carrie Lux
- Sticky Icky Booger Bugs
- Cadberry’s Letters
- Ghosts by Raina Telgemeier (comic): https://goraina.com/ghosts/
Recreational and educational videos explaining CF
The following are great resources for learning more about CF at an elementary level.
If the resource you are looking for is not listed above, please use our information request and referrals service for further guidance. You can email us at firstname.lastname@example.org or phone us at 1-800-378-2233 ext. 403.