Did you know that your version of Internet Explorer is out of date?
To get the best possible experience using our website we recommend downloading one of the browsers below.

Internet Explorer 10, Firefox, Chrome, or Safari.

Volunteer Advocate
cf insights cf insights

Archive for August, 2016

ORKAMBI™ Update: Letter from Vertex Pharmaceuticals

We have an  ORKAMBI™ update; please read this letter Cystic Fibrosis Canada received from Vertex regarding the CADTH reconsideration. Cystic Fibrosis Canada is committed to…

Read More

Advocacy in action: Simone’s story

My name is Simone McFee. I’m a 25-year-old woman from BC and I have cystic fibrosis (CF). As I’ve gotten older, this progressive disease has…

Read More

Funding decision for ORKAMBI™ Delayed

The Canadian Agency for Drugs and Technologies in Health (CADTH) announced today that the submission for ORKAMBI™ (lumacaftor/ivacaftor) will be reconsidered at an upcoming meeting…

Read More

Advocacy in action: Rae-Anne’s story

My name is Rae-Anne Davidson. I am 28 years old and from Ayers Cliff, Quebec. I was diagnosed with Cystic fibrosis (CF) at the age…

Read More

CF Awareness Day on Parliament Hill

On Tuesday May 10th2016, the Northern and Eastern Ontario Regional staff assembled in our nation’s capital on Parliament Hill for a wonderful day of advocacy…

Read More

Advocacy in Action: Access to a Future

Not only can access to medicine mean life-changing results for those living with a rare disease, it can also make a world of difference for…

Read More

Advocacy in Action: The Human Cost

John* has been taking Orkambi for the last two and a half years, starting as part of the clinical trial, rollover study and now through…

Read More

Advocacy in Action: Abby

Starting our Advocacy in Action series is the story of 25-year-old B.C. resident, Abby. Both Abby and her twin sister Simone have cystic fibrosis (CF),…

Read More

ADVOCACY IN ACTION: Access to Medicine

The Drug Approval Process in Canada Getting a drug from a lab all the way to patients who can benefit from it is a long…

Read More
Share