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Volunteer Advocate
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Collaborating with the Cystic Fibrosis Trust

International partners

Cystic Fibrosis Canada and the Cystic Fibrosis Trust are thrilled to announce an international collaboration on the paediatric feasibility study for the Cystic Fibrosis Trust’s SmartCareCF program. The study, referred to as CLIMB-CF,  will examine the use of remote home monitoring for children with CF, and is being led by researchers from Imperial College London, UK. This international partnership between two of the largest cystic fibrosis (CF) charities in the world will be the charities’ first collaboration together and will combine resources and expertise from both organizations.

CLIMB-CF study

The study aims to identify real-world applications of home monitoring in children and examine how these technologies could be used to support and improve CF care. Each study participant (child) along with their families will be given Bluetooth compatible devices and linked to a mobile phone installed with an app specifically designed for this study. Health information such as lung function, weight, heart rate among others will be tracked and monitored at home for six months. During this period, routine clinic visits will continue.

Royal Brompton Hospital in London, UK is coordinating this multi-clinic study in the UK and Canada. Recruitment began in January 2017 with a number of clinics across the UK along with two Canadian paediatric clinics joining the study over the next few months.

Potential game changer

Cystic Fibrosis Canada is incredibly grateful to the Cystic Fibrosis Trust for the opportunity to participate in their CLIMB-CF study. We look forward to the outcomes of this study and hope this will lead to future collaborations between our organizations.

“By encouraging children with CF to become more involved in their care, this valuable study has the potential to improve patient outcomes. We are excited, along with the clinics and patients in Canada who are participating, to be working with our colleagues in the UK on this initiative.” – Joanna Valsamis, Chief Healthcare, Research and Advocacy Officer at Cystic Fibrosis Canada

“We are thrilled to announce our collaboration with Cystic Fibrosis Canada on this potentially life-changing study. The Trust is committed to working across the UK and internationally on projects that can help to benefit the lives of people with CF and their families in every way possible, and this partnership presents a fantastic opportunity to continue the work of SmartCareCF and work side by side with a national CF charity.” Dr. Keith Brownlee, Director of Impact at the Cystic Fibrosis Trust

SmartCareCF

SmartCareCF was established by the Cystic Fibrosis Trust to investigate the use of technology in simplifying communication, streamlining care and giving people with CF greater control over their health. The programme is working with people with CF, their families and clinical teams to identify and test technologies and analyse the results of their use.

 

Donate to the Cystic Fibrosis Canada today to support our work and other future partnerships like the CLIMB-CF study: http://www.cysticfibrosis.ca/get-involved/donate-today

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