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Volunteer Advocate
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Meet Tammy, Mikayla, Madison and Darrin

I’m Tammy. I’ve been married to Darrin for almost 20 years and we live in Binbrook, Ontario. I was an elementary school teacher before having children and my husband Darrin works in IT as a Systems Analyst. We all enjoy spending time together as a family whether that is travelling to a fun warm weather destination in winter, or cottaging, or camping in Northern Ontario in the summer. Sometimes our family time is spent at home having family board games night or watching some reality TV together.

When each of my daughters were diagnosed with cystic fibrosis at birth, I decided to leave my job as an elementary school teacher in order to be able to devote more time for their daily medical care and to try and make life a little bit easier for them. Mikayla and Madison have had many ups and downs since diagnosis.

Today they each spend three hours every day completing inhalation treatments and chest physiotherapy. They each take 50 pills every day and they have had 12 surgeries between the two of them.

Cystic fibrosis has impacted us as a family by taking away precious time from us each day. When you look at Mikayla and Madison they look well, but in order for our children to look and be well, there is a huge amount both physically and emotionally that goes on behind the scenes. Managing treatments and medications is a time consuming and exhausting daily routine. It is something most families living with cystic fibrosis get used to, however, it is not easy. Mikayla and Madison are still regular teenagers with homework, after-school extracurricular activities, and part-time jobs, plus they also want time to just hang out with their friends.

I want CF Canada to be the charity of choice for Canadians this holiday season so that we can spend more time together as a family having fun instead of doing time-consuming daily treatments. Donations made give our family hope. With more funds being dedicated to critical care and research we hope to see improvements in daily cystic fibrosis treatment regime so that we don’t have to send our girls to college or university with this burden and responsibility of daily medical care. We just want them to have more time on a regular day that doesn’t involve inhalation treatments, pills or physiotherapy. It matters to us that our daughters are able to do anything they want to in life whether that be travelling, attending college or university or just having time each day to hang out with their friends. When our second child Madison was born with cystic fibrosis we gave her the middle name “Hope” because we have tremendous hope for the future of our girls and all Canadians living with cystic fibrosis.

For Tammy, Mikayla, Madison and Darrin and everyone else affected by CF, be the reason for a cure: http://bit.ly/2ADWJym