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Volunteer Advocate
cf insights cf insights

Advocacy in action: Rae-Anne’s story

My name is Rae-Anne Davidson. I am 28 years old and from Ayers Cliff, Quebec. I was diagnosed with Cystic fibrosis (CF) at the age…

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12 marathons in 15 days: a father runs for CF

From the 15th to the 29th of May, Cédric Bouillon, a father of three children, two of whom have cystic fibrosis (CF), ran 503 km…

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We’re on Instagram!

We’re very excited to announce that our official Instagram account is now live! Connecting with Canadians with cystic fibrosis (CF) is important to us and…

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CF Awareness Day on Parliament Hill

On Tuesday May 10th2016, the Northern and Eastern Ontario Regional staff assembled in our nation’s capital on Parliament Hill for a wonderful day of advocacy…

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Advocacy in Action: Access to a Future

Not only can access to medicine mean life-changing results for those living with a rare disease, it can also make a world of difference for…

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Summer Fun Starts Now

Is it just us, or do the months keep going by faster and faster? With the end of June comes the end of the 2015/16…

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Spotlight: Darryl Hemstreet

The dedicated members of our community never cease to amaze us! As part of our Spotlight series, we’re pleased to feature some of the hardworking…

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CF Care: Parenting & CF

As the school year comes to a close across the country, many parents will soon find themselves spending more time with their children as summer…

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Advocacy in Action: The Human Cost

John* has been taking Orkambi for the last two and a half years, starting as part of the clinical trial, rollover study and now through…

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