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Volunteer Advocate
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Advocacy in Action: The Human Cost

John* has been taking Orkambi for the last two and a half years, starting as part of the clinical trial, rollover study and now through…

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A Day in My Shoes: Myles Lynch

Myles was diagnosed with cystic fibrosis (CF) when he was just one month old. At 16, Myles received at double lung transplant. Now 18, Myles…

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Spotlight: GearUp4CF Rides

Looking for an interesting and fun way to support CF Canada this summer? If you’re into cycling (or know someone who is), join us this…

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From The Desk of the CEO: Thank You for Your Support During May Awareness!

What a month! Thousands of Canadians walked with us (rain or shine) at more than 70 CARSTAR Walk To Make Cystic Fibrosis History locations on…

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Advocacy in Action: Abby

Starting our Advocacy in Action series is the story of 25-year-old B.C. resident, Abby. Both Abby and her twin sister Simone have cystic fibrosis (CF),…

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ADVOCACY IN ACTION: Access to Medicine

The Drug Approval Process in Canada Getting a drug from a lab all the way to patients who can benefit from it is a long…

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Making CF History: Advocating for Our Community

One of our roles as a non-profit is to advocate for you, our community. Since 1960, we’ve been committed to ensuring people with CF, caregivers…

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Newborn Screening for Cystic Fibrosis in Canada Shows Benefits

Pictured above: Amelia Ann Steeves from Victoria, BC, who was born in the fall of 2011 and diagnosed with CF by newborn screening, shown in…

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Making CF History: Progress in Lung Transplantation

For those with advanced disease, transplantation may be the next step to help regain health. Currently, double-lung, heart-lung and liver transplants are the only definitive…

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