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Volunteer Advocate
cf insights cf insights

Introducing: CF Registry Facts

Last month we launched the 2014 Canadian CF Registry Annual Report! The Registry demonstrates our enhanced focus on leading in quality improvement and excelling in…

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Understanding How Other Proteins in the Body Interact with CFTR

Cystic Fibrosis Canada-funded researcher Dr. Igor Stagljar is part of a team doing ground-breaking research that could lead to new drug targets to treat cystic…

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Shinerama: Top Fundraising Tips

Shine Day may be the biggest fundraising day of Shinerama, but the months leading up to it are crucial if you’d like to reach (or…

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ORKAMBI™ Update: Letter from Vertex Pharmaceuticals

We have an  ORKAMBI™ update; please read this letter Cystic Fibrosis Canada received from Vertex regarding the CADTH reconsideration. Cystic Fibrosis Canada is committed to…

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10 benefits of volunteering with Cystic Fibrosis Canada

Volunteering with CF Canada is a great way to get involved and give back. Not only does it benefit our community, but volunteering has plenty…

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Spotlight: Ross Drake

Meet Ross Drake, of Dartmouth, Nova Scotia. Ross is the father of three sons, two of which live with cystic fibrosis (CF). Ross has dedicated…

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Shiner of the Month – June 2016

Hello Shinerama Nation! We are so excited to announce the Shiner of the Month for June. We had plenty of excellent nominees, but one shiner…

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THE 2014 CANADIAN CF REGISTRY ANNUAL REPORT IS HERE

The latest edition of the Canadian Cystic Fibrosis (CF) Registry has been released online today. Inside, you’ll find the latest national statistics and data, which gives…

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Advocacy in action: Simone’s story

My name is Simone McFee. I’m a 25-year-old woman from BC and I have cystic fibrosis (CF). As I’ve gotten older, this progressive disease has…

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