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Volunteer Advocate
cf insights cf insights

Message from the Chair of the Board of Directors for CF Canada

Dear Cystic Fibrosis Canada Members and Supporters, It is with great anticipation and humility that I assume the role of Chair of the Board of…

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Cystic Fibrosis Canada’s Upcoming 2017 Broken Arrow Conference

Cystic Fibrosis Canada is pleased to host the upcoming 16th biennial Broken Arrow conference, which brings members of the CF community together, including leading clinicians…

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Cystic Fibrosis Awareness Month is Here

Today marks the beginning of a very important time of year for us, cystic fibrosis awareness month. We are so excited to kick off what…

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On Parenting: James’s Story

Cystic Fibrosis Canada will be profiling different journeys of fertility and parenting with CF. If you are interested in sharing your story please email tgillespie@cysticfibrosis.ca….

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Why register as an organ donor?

The last week of April marks National Organ Donation Awareness week. We know our community knows the importance of organ donation, but how would you…

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Spotlight: Hannah Brine

What’s your involvement with CF Canada (are you a volunteer, donor, event organizer, etc.)? I am a fundraiser for CF Canada. Just this past fall,…

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What’s unique about living with a rare disease?

We know can be frustrating to live with a rare disease that is not well known, but it does come with a unique perspective and…

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Announcing the New Cathleen Morrison Research Impact Award

Cystic Fibrosis Canada is pleased to announce the new Cathleen Morrison Research Impact Award. Cathleen Morrison was Cystic Fibrosis Canada’s longest-serving Chief Executive Officer. Under…

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My Lung Transplant Journey: Guest Post from Wally Speckert

My name is Wally Speckert. I am a 56-year-old CF adult. When I was born, the life expectancy was only 4 years of age.  I…

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