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Volunteer Advocate
cf insights cf insights

Q&A with Cystic Fibrosis Canada volunteer, Emily Allan

What’s your involvement with CF Canada (are you a volunteer, donor, event organizer, etc.)?
-I have been a volunteer/organizer with the Great Strides walk, an event participant with GearUp4CF in 2011, 2013 and GearUp4CF PEI 2016, and now, with the help of my husband, we’re running our own event! From June 10, 2017 to July 1, 2017, I will be running the length of the Bruce Trail (895km), end to end, all to raise funds and awareness for CF! (for more details, visit www.endtoendcf.ca)

What is your connection to CF?
-My cousin, Sarah Bloomfield, had CF. We were 6 months apart in age, and spent our childhood growing up together. We were always active, and always laughing. I can still hear that laugh – it was loud and infectious…Sarah lit up a room! Unfortunately, on March 15th, 2005, Sarah died waiting for new lungs, just two weeks before her 24th birthday.

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What has been the greatest highlight of supporting CF Canada for you?
-The community and the support. When you involve yourself in the CF community, you instantly gain a tight family of supporters, fighters and survivors. After participating in GearUp4CF for the first time in 2011, I gained instant, lifelong friends, and that network just keeps growing the more I get involved. The battle against CF can’t be fought alone, and this community takes hold and fights right alongside you.

Why do you think it’s important to support CF Canada?
-Canada is one of the leading countries in CF research as well as CF life expectancy, and this isn’t a fluke. CF Canada puts their fundraising dollars to good use, investing in researchers, treatments and therapies that are making a difference in the lives of those with CF. CF Canada is making gains, and improving the lives of those with CF. Donating to CF Canada helps make a difference!

What will #aworldwithoutCF mean to you?

-#AWorldWithoutCF will mean parents no longer have to go through the pain of out-living their children. It means that those with CF can live a full life and tackle any challenge that comes their way, not having to worry about when it will all come to an end. It means that those given a second chance at life with new lungs won’t have to keep fighting (infections and chronic rejection, etc.).

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