At Cystic Fibrosis Canada, we are lucky to have remarkable volunteers who have been working for the cause for several years. Today, we are pleased to showcase two of them, Anne‑Marie and Claude, who live in Quebec. Their involvement and assistance contribute in large part to the success of the Saguenay walk. Read on to learn more about them.
What is the nature of your commitment to Cystic Fibrosis Canada (volunteer, donor, event organizer, etc.)?
Claude and I have been volunteers for cystic fibrosis for nearly 19 years. We organize the cystic fibrosis walk and the Dooly’s Chicoutimi-Nord golf tournament.
Why did you become volunteers during the Walk?
We organize the cystic fibrosis walk with a great gang of relatives and friends who are also volunteers. We are all united for the same cause and the same goal, i.e. finding a cure for our children. By walking for cystic fibrosis, we hope to gain visibility in order to raise awareness of this terrible deadly disease and raise as much money as possible for research.
What is your connection to cystic fibrosis?
Our son, Gabriel, has the disease. He is 22 years old.
Gabriel leads a very busy life. His first treatment of the day starts at 6:00 a.m., and his last one ends at around 10:00 p.m. He tries to live normally like his friends, but he must balance school, work and treatments, which is not always easy given his condition. We are very proud of him. He is a very courageous young man who is filled with hope. At 22, Gabriel has set a great many goals for himself, and we will do everything we can to help him achieve them.
What does #AWorldWithoutCF mean to you?
For us, a world without cystic fibrosis means that our family would have a normal life. Cystic fibrosis changes not only the lives of the people who have the disease, but also the lives of their entire families. Also, living without cystic fibrosis would relieve the stress that we feel on a daily basis and remove the worry that the disease could take our son away from us at any moment.
We try our best to not think about the negative aspects of the disease. We focus on the good things in life and the pleasant moments that we can spend as a family. When you are a parent to a sick child, you learn to live your life one day at a time and enjoy every moment.
Our lives are made up of hope, strength, courage and love. To us, Gabriel is not an ordinary child. He is an EXTRAORDINARY child.