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Volunteer Advocate
cf insights cf insights

Research Impact and Me

There is so much to celebrate with the advancements made in cystic fibrosis research and care. It’s easy to get wrapped up in statistics and news items, but research impacts people living with CF on a personal basis too. Here are some stories from our community about the impact research has had on them:

  • “The newest development in transplant technology was used in my transplant and gives me better reassurance that the lungs I have are qualified for me.” – Rob Burtch
  • “If not for the research into new drug treatments and lung transplantation I would not be here today, plain and simple! CF has affected every facet of my life, both positive and negative and it has made me a strong, resilient person. I have CF, but CF does not have me!” – Brenda Chambers-Ivey
  • “Research into the effects of nebulized hypertonic saline led me to start on a non-antibiotic that has positive impact on my lung functioning. I like that hypertonic saline is a more natural option which doesn’t hold any risk of developing a resistance.” – Terra Stephenson
  • “It allows me to live the quality of the life that I have so far. Without it, as when I was born, life expectancy was way lower. It’s allowed to live this long and complete the things I have.” – Chelsea Delaney
  • “When I was diagnosed in the Seventies my parents were told I would not live past my teens. No one was at fault for saying this – information, treatment and care that was available at the time suggested this was the case. I am 45 now on my original lungs. I was a physical education teacher for 20 years and played competitive sports throughout my childhood, youth and teens. CF research has offered me (us) what my parents were told I would not have. I have cared for myself diligently and used all new information and treatment opportunities to the fullest. Now in the later stages of CF, I still have hope and I believe that many more good things are to come.” – Alex McCombes

 

Have insights you would also like to share? To be quoted in our blog please contact Terra at tgillespie@cysticfibrosis.ca

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