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Volunteer Advocate
cf insights cf insights

Spotlight: Jodi O’Neill

What’s your involvement with CF Canada (are you a volunteer, donor, event organizer, etc.)?

I am the Bath, New Brunswick Walk Coordinator.

What is your connection to CF?

My son, Colton, has cystic fibrosis.
We started looking into volunteering with Cystic Fibrosis Canada when Colton was a year old.  Monica, my wife, and I wanted to do something to help the cause, so we started with setting up some coin boxes and sold bracelets in our community. It wasn’t what we were looking to do, but we were doing something. We then looked into attending the Moncton Great Strides Walk (now the Walk to Make Cystic Fibrosis History), we were unable to participate since the whole family couldn’t make it, and that was important to us. We started planning our own walk in August of that year.

What has been the greatest highlight of supporting CF Canada for you?
Dave Watson, with a few people from the Moncton Chapter, drove up from Riverview to help with our first walk. It was overwhelming. We expected about to raise about $3,000 total.  We had 5 teams show up and each team almost raised $2,000 each bringing our first walk to almost $10,000! I’ve met some really kind and helpful people and had the opportunity to meet the founders of Cystic Fibrosis Canada, which are amazing opportunities, brought to me from this walk.

Why do you think it’s important to support CF Canada?
Having Colton diagnosed with cystic fibrosis really changed our outlook on life. Colton enjoys the walk so I’ll do it for the next 20 years – we want and need to make CF History.

What will #aworldwithoutCF mean to you?
Wow what a question to ask a parent with a child with CF! A world without CF would mean that we as parents would have a heavy weight lifted off of our shoulders of what the future holds for our kids and in turn give us more quality time with them now when they are kids.