Who am I? I’m a 31-year-old woman named Sandra. Not “I have cystic fibrosis, and my name is . . . ” This is how several people choose to introduce me, and you’ve probably figured out that I’m not crazy about it. I may have to live with the disease, but it doesn’t define me as an individual. I’m a double lung transplant recipient since February 6, 2018, and I work as a nurse clinician. In addition, I’m working toward a bachelor’s degree in administration and management by accumulating certificates; I’m currently studying for a certificate in accounting.
Now that I’ve introduced myself, you know that I have cystic fibrosis since birth. For as long as I can remember, my parents and I have always been involved in the cause. In particular, we participate by raising funds.
It all began with the Walk to Make Cystic Fibrosis History in which we participated for many years. Later, during my childhood, an acquaintance spoke to my mother about a day of golf that included a morning brunch, a golf tournament and a dinner. The money raised during this event would directly benefit the cause of cystic fibrosis. Therefore, my mother agreed to take on the project. My parents also decided to organize a mechoui in my home town on Saint‑Jean‑Baptiste Day. This event lasted a few years and helped raise money for the cause. Now, my mother and I are in charge of the golf tournament. For the last three years, we’ve been organizing the Tournoi de golf de l’Espoir, which still includes a brunch, a day of golf with a cart, and a dinner. Surprisingly, the amount that we’re able to donate to Cystic Fibrosis Canada grows every year. So far, the event has raised $41,129. Since the beginning of this adventure, we’ve collected approximately $300,000, a sign that people are truly aware of this important cause.
I’m so happy and grateful to all the people who join us for this event year after year. Although their donations are more and more generous, even the smallest donation is a step toward a cure.
Why is it so important for me to contribute to the cystic fibrosis community? Since I live with the disease, I see the research, treatments and medications constantly evolving. I know that I’m still alive and able to tell my story because of this important progress. I hope that research will one day find a way to eradicate this disease! And how can we help? By contributing to the cause of cystic fibrosis and continuing to give generously.
Thank you so much for keeping this wonderful cause close to your heart.
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