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Volunteer Advocate
cf insights cf insights


The latest edition of the Canadian Cystic Fibrosis (CF) Registry has been released online today. Inside, you’ll find the latest national statistics and data, which gives us a comprehensive picture of the CF population in this country and helps CF clinicians and researchers improve care for people living with CF.

The first Canadian CF Registry was created in the early 1970s to monitor clinical trends in the Canadian CF population. Ever since, the Registry has played an invaluable role in the improvement of the quality and length of life of people with cystic fibrosis by helping us:

  • Better understand clinic populations
  • Respond to emerging healthcare issues
  • Develop quality improvement initiatives
  • Track clinical outcomes


The Registry demonstrates our enhanced focus on leading in quality improvement and excelling in CF care, and ultimately moves us closer to our goal of establishing national standards for CF care and treatment. Our success and progress toward this goal would not be possible without the continued cooperation and participation of clinical personnel and Canadian CF patients along with the generous support of our partners, donors and volunteers – thank you!

This week we will be hosting a live stream on our Facebook page with the Registry experts where you can ask them any questions you might have – keep an eye on our page for the date and time.

Please click the image below to view the full report.

– Norma Beauchamp, CEO