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Volunteer Advocate
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Tips for travelling with CF

Now that it’s summer do you have a getaway planned? We want you to have the best trip you can! So whether it’s your first big vacation, or you’re a seasoned traveler, we rounded up this list of tips for travelling with CF just for you:

  • “Plan ahead. Pack non-refrigerated medications ahead of time (use a weekly pill divider/keeper) and if possible, invest in a second aerosol machine so it can be packed ahead of time.” – Jess Best
  • “Have all the proper medication documentation. Always have a backup plan. Talk to your Doctor, they may have people you can contact overseas.” – Rob Burtch
  • “Last June my friend and I took a 3 week trip to Italy. To ensure the least trouble possible I obtained a letter from my doctor listing all current medications and dosages. I’d also suggest to take extra medication with you (it was recommended by the clinic that I take twice as much medication as I needed) and find out where your local hospitals and CF clinics are. Never pack your medications in your checked baggage.” – Brenda Chambers-Ivey
  • “When it comes to the airport, it’s always better to be over prepared. I keep all my meds in their original packaging with my name on all the bottles and have an accompanying letter from my doctor’s explaining my situation. Most importantly, don’t ever check your meds…that is one bag you can’t afford to lose!” – Meaghan MacRury
  • “Camera backpacks with flexible velcro compartment options are fabulous for carrying on your medications and protecting your medical equipment. Never put medications or medical equipment in your checked luggage.” – Megan Parker
  • “I definitely recommend discussing your plans with your CF team before you go. When I went to Europe, I had the contact information for a couple of CF clinics there, just in case I needed them. From my own experience, I have also learned that it is best not to travel for too long, even though it can be tempting to do so – I was in Europe for 5 weeks, and I got a cold halfway through that caused a lung infection, which then had to be dealt with when I got home. If I had only been travelling for 2 weeks, I could have addressed it more promptly.” – Terra Stephenson
  • “Given where my health is now, I do not travel far. I am 45 years old (not yet listed). I have had many wonderful life experiences all over the world; I can look back with great gratitude at those experiences. My main tip in regards to travel is to be prepared. Bring extra, have letters and prescriptions in place, be patient at customs and know where you are going. Have a back up plan and people you can reach out to (I always put medication in my wife’s bag as well, etc.). Familiarize yourself with local hospitals and health units. I spent a year in Australia in my early twenties. My clinic forwarded my information and I actually visited a clinic in Sydney while there – just to check in. Lastly… enjoy your life and the travel opportunities that arise. Make memories and give yourself experiences that you have to cherish and to perhaps look forward to again one day – I do.” – Alex McCombes

Have insights you would also like to share? To be quoted in our blog please contact Terra at tgillespie@cysticfibrosis.ca