May is Cystic Fibrosis Awareness month, which culminates in The Walk to Make Cystic Fibrosis History on May 28. This year, we are raising awareness about cystic fibrosis, and the fight to access to medicine. Throughout the month on this blog we will be sharing perspectives from our CF community, those living with CF and loved ones of CFers, answering some of our big questions.
Today we’re asking: What drives you to walk in The Walk to Make Cystic Fibrosis History?
- “I walk because it is a social event. I love social events! What I love more is a social event which does some good. The walk raises money and awareness for CF. Perfect combination.” – Jess Best, Lives with CF
- “We walk for my 4 year old son Matthew! We walk to raise awareness for Cystic Fibrosis! We walk to raise funds for research to find a cure! We walk for hope!” – Gillian Maramieri, mother to CF champion Matthew
- “I walk for many reasons. To remember and honour those with Cystic Fibrosis, especially my friends who have battled this disease and are no longer with us (there are too many of them). I walk to raise awareness of Cystic Fibrosis in our region, to raise money for research to beat this horrible disease and to support those hoping and praying for a cure. And lastly, I walk for me. I am a CF warrior who will keep fighting until I no longer can.” – Brenda Chambers-Ivey, Lives with CF
- “We walk for Quinn and for all other CF patients that are one day hoping to find a cure.” – Cristina and Ryan Kinsella, parents to Quinn who is living with CF
- “For me, walking is really about coming together as a community and showing others touched by CF that it is an important cause and one worth fighting for. Every year I am overwhelmed by the support shown to me by my family, friends, and coworkers. They show me support in so many ways, including making donations to CF, educating others about CF, and letting me know that they are with me in my CF journey by walking with me.” – Megan Parker, Lives with CF
- “I walk to move forward, to give my best and to survive. I was a Physical education teacher for 20 years; I walk to promote healthy active living. I also walk because there will come a day when I cannot. I walk as part of my treatment to keep my body (and mind) healthy and to minimize the negative effects of a sedentary lifestyle. So, I cherish walking and try to ensure I am aware and present for every step I take as walk through life with Cystic Fibrosis.” – Alex McCombes, Lives with CF
- “I walk to raise awareness for a rare disease, one that has seen staggering improvements in care in the last two decades due to fundraising from people like you. When I was born, CF was a childhood disease; I am now 28 years old and walk so that I can continue to raise funds that will continue to improve the treatment of my disease, so that I can walk for many years to come. ” – Chelsea Gagnon, Lives with CF
- “I walk every year for my daughter, Sloane. Our goal is to raise funds and awareness for her to breathe easy and live a long and healthy life.” – Trish Vendittelli, mother to CF warrior Sloane
- “I walk for my friends, my family, and for all of the young CFers out there. I also walk for my two friends that I had, sisters, that both passed away after their double lung transplants. I walk for my new friends, Brayden and Keira, and I walk to help and bring awareness of what this disease is and how one day there will be cure found. I also walk for myself. I look forward to growing old and having a family, and without all of the support I receive, I wouldn’t be able to have hope that that will happen for me.” – Jordan, Lives with CF
- “I walk as a way to cope. CF has the ability to make you feel completely alone and every year I walk, I feel a little bit less alone. To come together with family, friends, fellow CF warriors, and everyone else that takes time out of their lives to try and better ours is a gift. It is my small token of appreciation for everyone that has helped me get to where I am today, and to be thankful for every hurdle I have overcome on my journey. We need to celebrate every accomplishment and every dollar raised because every dollar could potentially be the last one needed to cure CF once and for all.” – Meaghan Macrury, Lives with CF
- “I walk to see others who are supporting the cause and also try and put a face to CF. It is great to have participated over the years to see old friends and new (at a distance of course) and see how the dynamic has changed for what a realistic expectation can be for those with Cystic Fibrosis. It’s as rewarding for me as it is to work to fund raise and support the walk.” – Jim Best, Lives with CF