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Your CF Morning Routine

The morning routine is an important part of the day for everyone. It allows us to begin the day feeling good and productive. It often starts off with a big bowl of milk and cereal, a coffee or a morning run. But what does a morning routine of a person with a chronic illness, and more specifically, cystic fibrosis, look like? Here’s what some members of our CF community have to say about this topic:

– “A CFers morning routine takes time to adjust to as we age and the disease progresses. I have gone through every phase…from putting side too much extra time to do all the morning necessities and then being too early for work or school; to the total opposite where I decided sleep was more important so I didn’t allot the proper time…and did I ever suffer? It takes time to mix meds, go through inhalations, pack all the required meds you need for the day AND get yourself looking presentable to the outside world… I’ve learned that if I want to make it through the day with minimal struggle, I have to take the extra time in the morning to properly prepare. The real problem is, once you become an adult and take on all your care by yourself, you have no one to be mad at but yourself if you skip any steps!” – Meaghan MacRury

– “I find that if I eat too much before doing physio, I can get some issues with reflux, but if I don’t eat at all, then I don’t feel well later. To balance this out, I find having something light, like a smoothie, first thing in the morning helps me to get going so that I can then do my physio and continue with the rest of my day.” – Terra Stephenson

– “I try to make sure I give myself a lot of time. Prior to transplant, I was also using Tobi podhalers to help speed up morning treatments.” – Rob Burtch

-“ I am 15 years post double lung transplant so my routine differs greatly from someone who is not. Having a transplant is truly amazing, but the way it was explained to me was “you are exchanging an unmanageable disease for a manageable one”. My morning, and evening, routine still consists of many medications including antirejection medications and insulin due to steroid-induced diabetes post-transplant. I also do home spirometry test many times a week, use sinus rinses and nasal sprays for sinusitis. BUT, what I have to do is very minor compared to CF persons who are pre-transplant.” – Brenda Chambers-Ivey

-“ Do as much planning and prep the night before as possible. And if I’m really pushed for time, I’ll combine doing some of my inhaled medications while doing other things like blow drying my hair.” – Kim Wood

 


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