Cystic Fibrosis Canada
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Cystic Fibrosis in the News

News Releases


Our Latest News

2013-04-04

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CF Newborn Screening comes to Nova Scotia

CF Newborn Screening comes to Nova Scotia

2013-03-04

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Steady progress reported for Canadians with cystic fibrosis

The Canadian Cystic Fibrosis Registry 2011 Annual Report

2012-12-20

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Cystic Fibrosis Canada Featured in National Post

Cystic Fibrosis Canada Featured in National Post

2012-12-19

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Statement from Cystic Fibrosis Canada on the funding approval of KALYDECO™ in England

Statement from Cystic Fibrosis Canada on the funding approval of KALYDECO™ in England

2012-12-18

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Medal winner says it's all about the kids

Medal winner says it's all about the kids

2012-11-08

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New Drug Target Found For Cystic Fibrosis Lung Disease

New Drug Target Found For Cystic Fibrosis Lung Disease

2012-10-22

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Canada’s cystic fibrosis patients make a plea for access to KALYDECO

Canada’s cystic fibrosis patients make a plea for access to KALYDECO

2012-10-15

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Cystic Fibrosis Canada Nursing Advisory Group

Cystic Fibrosis Canada Nursing Advisory Group

2012-10-11

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Ken Chan, Vice President of Advocacy, Research & Healthcare at Cystic Fibrosis Canada appears in the Careers section of The Globe & Mail

Ken Chan, Vice President of Advocacy, Research & Healthcare at Cystic Fibrosis Canada appears in the Careers section of The Globe & Mail

2012-10-04

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Cystic Fibrosis Canada Supports Bill C-445, An Act to Amend the Canadian Human Rights Act (Genetic Characteristics)

Cystic Fibrosis Canada Supports Bill C-445, An Act to Amend the Canadian Human Rights Act (Genetic Characteristics)

2012-10-03

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Statement from Cystic Fibrosis Canada on Health Canada’s announcement of orphan drug framework

Statement from Cystic Fibrosis Canada on Health Canada’s announcement of orphan drug framework

2012-10-01

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KALYDECO (Ivacaftor) Patient Input Submissions required by October 10

KALYDECO (Ivacaftor) Patient Input Submissions required by October 10

2012-09-24

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Delayed Access to AquADEKs Chewable Tablets

Delayed Access to AquADEKs Chewable Tablets

2012-09-21

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Access to Cayston© in Ontario

Access to Cayston© in Ontario

2012-09-21

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Call for Patient Input Submission on KALYDECO

Call for Patient Input Submission on KALYDECO

2012-09-18

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Access to Cayston© in BC

Access to Cayston© in BC

2012-09-14

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Access to TOBI© and TOBI PODHALER© in British Columbia

Access to TOBI© and TOBI PODHALER© in British Columbia

2012-08-17

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Maureen Adamson presents Ian McClure with a Queen Elizabeth II Diamond Jubilee Medal at Kinvention

Maureen Adamson presents Ian McClure with a Queen Elizabeth II Diamond Jubilee Medal at Kinvention

2012-08-08

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CBC PEI interview - Ken Chan and Melvin Jay urge Quebec and the Maritimes to join the rest of Canada in life-saving CF newborn screening

CBC PEI interview - Ken Chan and Melvin Jay urge Quebec and the Maritimes to join the rest of Canada in life-saving CF newborn screening

2012-08-03

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Research Grants Update: Outstanding Interest for Cystic Fibrosis Canada Research Grants

Research Grants Update: Outstanding Interest for Cystic Fibrosis Canada Research Grants

Cystic Fibrosis in the News

2013-05-22

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Letter: Quebec is behind on testing newborns for cystic fibrosis

Dr. Larry Lands discusses the importance of CF newborn screening.

2013-05-22

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Cystic Fibrosis patients can’t risk health by meeting in person, but now have online hangout

My CF Canada Network addresses isolation, fosters friendship

2013-05-15

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A breath of fresh air - but only for some

A long-awaited cystic fibrosis drug is the next best thing to a cure. The bad news? It costs almost $300,000 a year.

2013-05-14

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Professional triathlete won’t let cystic fibrosis slow her

Lisa Bentley has been a professional tri-athlete for 20 years but this inspiring woman’s biggest challenge is dealing with cystic fibrosis.

2013-05-14

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Waiting Breathlessly

Maureen Adamson talks about organ donation as an important end-stage option for Canadians with cystic fibrosis.

2013-05-03

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CF drug too costly for many patients

On Canada AM

2013-05-03

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Expensive cystic fibrosis drug leaves most families out

KALYDECO™ is discussed on CTV News.

2013-05-01

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SickKids: Cystic fibrosis researchers growing their own lung cells

Stem cell research at SickKids lets scientists test multiple treatment options for the many strains of cystic fibrosis

2013-01-23

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Scientists Identify New Strategy to Fight Deadly Infection in Cystic Fibrosis

Scientists Identify New Strategy to Fight Deadly Infection in Cystic Fibrosis

2013-01-07

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Fifteen attractions in Niagara Falls will be participating in the 25th annual $1 Museum Day raising funds in support of Cystic Fibrosis Canada on January 13

Fifteen attractions in Niagara Falls will be participating in the 25th annual $1 Museum Day raising funds in support of Cystic Fibrosis Canada on January 13

2013-01-02

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Nova Scotia to review cystic fibrosis newborn screening

Nova Scotia to review cystic fibrosis newborn screening

2013-01-02

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Watch CTV Calgary's special report on Health Canada’s recent approval of KALYDECO™ for use in Canada

Watch CTV Calgary's special report on Health Canada’s recent approval of KALYDECO™ for use in Canada

2012-12-07

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Ken Chan, our Vice President, Advocacy, Research and Healthcare, was featured in The Montreal Gazette following the recent announcement of Health Canada’s KALYDECO™ approval

Ken Chan, our Vice President, Advocacy, Research and Healthcare, was featured in The Montreal Gazette following the recent announcement of Health Canada’s KALYDECO™ approval

2012-12-07

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CF Champion Margaret Benson has defied all odds. Read more on her winning CF spirit featured in the North Shore Outlook

CF Champion Margaret Benson has defied all odds. Read more on her winning CF spirit featured in the North Shore Outlook

2012-12-07

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Erin Wallis and Shannon Andrews, whose “Cards for Kim” project is benefiting Cystic Fibrosis Canada are featured in the Courier-Islander

Erin Wallis and Shannon Andrews, whose “Cards for Kim” project is benefiting Cystic Fibrosis Canada are featured in the Courier-Islander

2012-11-15

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Maureen Adamson, President and CEO, and David Gilmer, Vice President, Fund Development and Marketing, were on hand to thank Walmart Canada and Katie Schulz, Mom of the Year 2012 winner, for their generous $100,000 donation

Maureen Adamson, President and CEO, and David Gilmer, Vice President, Fund Development and Marketing, were on hand to thank Walmart Canada and Katie Schulz, Mom of the Year 2012 winner, for their generous $100,000 donation

2012-11-12

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Lace Bite, a film about the Longest Game 4 CF, the incredible world record-breaking women’s hockey game which raised funds and awareness for CF research and care, screens in Vancouver this Saturday

Lace Bite, a film about the Longest Game 4 CF, the incredible world record-breaking women’s hockey game which raised funds and awareness for CF research and care, screens in Vancouver this Saturday

2012-11-09

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Squash CF Pumpkin Launch event raises money for CF research and care

Squash CF Pumpkin Launch event raises money for CF research and care

2012-11-07

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Promising news from our research community: Cystic Fibrosis Canada-funded researcher, Dr. Stuart Turvey, and his team may have discovered a new pathway for treating lung inflammation in cystic fibrosis

Promising news from our research community: Cystic Fibrosis Canada-funded researcher, Dr. Stuart Turvey, and his team may have discovered a new pathway for treating lung inflammation in cystic fibrosis

2012-11-01

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Cystic Fibrosis Canada President & CEO Maureen Adamson Appointed to TTC Board

Cystic Fibrosis Canada President & CEO Maureen Adamson Appointed to TTC Board

News Releases

2013-05-23

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Great Strides™ walk this Sunday, May 26

Join the fight against cystic fibrosis in one of 60 walks in Canada

2013-05-15

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Connecting Canadians with Cystic Fibrosis

First Social Network for Canadian CF Patients Launched Today: The 'My Cystic Fibrosis Canada' Network

2013-05-01

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PSA Campaign Launched Today in Newfoundland & Labrador for CF Newborn Screening

“Raise Your Voice” with Céline Dion for Children with Cystic Fibrosis

2013-05-01

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PSA Campaign Launched in Quebec Today for CF Newborn Screening

“Raise Your Voice” with Céline Dion for Children with Cystic Fibrosis

2013-04-30

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May is Cystic Fibrosis Awareness Month

May is Cystic Fibrosis Awareness Month

2013-03-25

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Cystic Fibrosis Canada Welcomes Common Drug Review Recommendation for KALYDECO™

Cystic Fibrosis Canada Welcomes Common Drug Review Recommendation for KALYDECO™

2012-12-03

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Cystic Fibrosis Canada Welcomes Health Canada’s Approval of KALYDECO™

Cystic Fibrosis Canada Welcomes Health Canada’s Approval of KALYDECO™

2012-11-15

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National Philanthropy Day Message

National Philanthropy Day Message

2012-10-31

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Cystic Fibrosis Canada fosters collaboration in CF research to benefit patients

Cystic Fibrosis Canada fosters collaboration in CF research to benefit patients

2012-10-03

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Mac’s Raises Another $100,000 for CF Research and Care

Mac’s Raises Another $100,000 for CF Research and Care

2012-10-01

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CF Mom Katie Schulz wins $100,000 for Cystic Fibrosis Canada

CF Mom Katie Schulz wins $100,000 for Cystic Fibrosis Canada

2012-09-25

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Ken Chan Addresses CAHR Conference

Ken Chan Addresses CAHR Conference

2012-07-26

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Cystic Fibrosis Canada Calls for CF Newborn Screening in Every Province Early CF Detection Saves Lives

Cystic Fibrosis Canada Calls for CF Newborn Screening in Every Province Early CF Detection Saves Lives

2012-06-19

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Advocis Peel-Halton Annual Charity Golf Tournament Raises $20,000 for Cystic Fibrosis

Advocis Peel-Halton Annual Charity Golf Tournament Raises $20,000 for Cystic Fibrosis

2012-05-28

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First Peel Region Great Strides™ walk launched today

First Peel Region Great Strides™ walk launched today: Lisa Bentley, CF Champion, leads steps to cure cystic fibrosis

2012-05-08

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Cystic Fibrosis Canada Congratulates Manitoba Government: Funding for Newborn CF Screening to Save Lives

The Manitoba Government announced today that it will continue to provide annual funding to support an expanded universal newborn screening program that will include cystic fibrosis

2012-04-30

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May is Cystic Fibrosis Awareness Month

Every Canadian Called on to Fight for People Struggling with CF

2012-04-30

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"Freshh” Kick-Off for May―Cystic Fibrosis Awareness Month

Ryan Morrissette Asks Canadians to Join His CF Fight

2012-04-26

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MEDIA ADVISORY (PHOTO OP) - “Freshh” Dance Sensation Ryan Morrissette to Kick-off May — Cystic Fibrosis Awareness Month

Ryan Morrissette and Freshh, the dynamic B.C. hip hop dance crew competing in the finals on Canada’s Got Talent next month, will launch May — Cystic Fibrosis Awareness Month

2012-04-02

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SickKids-led study identifies multiple genes linked to differences in Cystic Fibrosis

SickKids-led study identifies multiple genes linked to differences in Cystic Fibrosis