Join our advocacy initiative by raising your voice.
A new CF drug has the potential to significantly improve the lives of many people with CF. It is imperative the drug is covered by public and private drug plans.
Although Orkambi™ could eventually be indicated for up to 50% of the Canadian CF population, ensuring that Orkambi™ is covered by public and private drug plans is important not just for the people for whom Orkambi™ is indicated. It is important to all of the CF community because we know that in the coming years there are going to be many new drugs.
We must take action now so that decision-makers understand CF, appreciate the expertise of CF physicians who are prescribing these life-changing drugs, and commit to ensuring all people with CF have access to the best medicines available to them.
CF Advocates can have a significant impact on the way CF issues are addressed in Canada by all levels of government. Working with CF Canada, advocates build relationships with elected and appointed officials in order to increase support for programs, services and policies that can improve the quality of life for people with cystic fibrosis.
On Tuesday, September 26th, the 2017 instalment of the Jehangir Saleh Lecture Series will be held in the Oakham Lounge at Ryerson University! Join us and our very own Wally Speckert for a great and informative evening!
Patrick is an inspiring, motivated individual that doesn’t let cystic fibrosis (CF) stand in his way of being successful. Diagnosed with CF at birth, Patrick has only looked at the positive side of things, often telling others that “It could be worse!”