Join our advocacy initiative by raising your voice.
A new CF drug has the potential to significantly improve the lives of many people with CF. It is imperative the drug is covered by public and private drug plans.
Although Orkambi™ could eventually be indicated for up to 50% of the Canadian CF population, ensuring that Orkambi™ is covered by public and private drug plans is important not just for the people for whom Orkambi™ is indicated. It is important to all of the CF community because we know that in the coming years there are going to be many new drugs.
We must take action now so that decision-makers understand CF, appreciate the expertise of CF physicians who are prescribing these life-changing drugs, and commit to ensuring all people with CF have access to the best medicines available to them.
CF Advocates can have a significant impact on the way CF issues are addressed in Canada by all levels of government. Working with CF Canada, advocates build relationships with elected and appointed officials in order to increase support for programs, services and policies that can improve the quality of life for people with cystic fibrosis.
On Sunday, May 28, 2017, thousands of participants across Canada will unite at local community walk sites during CF awareness month to celebrate their fundraising efforts, while imagining a world without CF.
Over 10,000 supporters , including volunteers, donors, partners and participants help support Cystic Fibrosis Canada’s mission; To end cystic fibrosis (CF). The funds raised at the walk are used to target world-class research, supporting and advocating for high-quality individualized CF care and raising and allocating funds for these purposes.
Award-winning photographer and graphic designer Ian Pettigrew knew something wasn’t quite right when he was unable to have children. He was 38 years old when he discovered the real culprit behind his health issues – cystic fibrosis.