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Cystic Fibrosis Canada Chair In Adult Cf Research At The University Of Toronto
Canadians with cystic fibrosis are living longer, healthier lives thanks to innovative research on new therapies and advances in patient care. Today, nearly 60% of Canadians with CF are adults and the median age of survival continues to increase. In light of this exciting progress, it is becoming increasingly important to continue to focus on CF research and to address the unique challenges in care faced by adult patients and their healthcare teams.
To address these challenges, Cystic Fibrosis Canada has partnered with St. Michael’s Hospital Foundation to create the first-ever Chair in Adult CF Research at the University of Toronto. Thanks to the generous support of our donors, partners, and volunteers, Cystic Fibrosis Canada will contribute $500,001 to this program over the next five years and St. Michael’s Hospital Foundation will match the investment for a total of $1 million. Dr. Elizabeth Tullis was appointed to the position in July 2014. Dr. Tullis is the Director of the Toronto Adult CF Centre at St. Michael’s Hospital, a clinic that provides multidisciplinary care to over 450 CF patients and is extensively involved in clinical research and healthcare training.
The goals of the research chair are to:
- Create CF care guidelines and develop tools to share information with front-line providers
- Incorporate quality improvement initiatives in patient care in clinics
- Improve access to care for Canadians with CF through the use of technology
- Increase formal involvement of CF patients and their families in clinics
- Develop strategies and tools to improve patient health
- Use the Canadian CF Registry to guide quality improvement initiatives and clinical research in CF
Dr. Tullis reminds us that CF treatments have come a long way over the last few decades but that continued clinical research is fundamental to improving patient care. As the first to hold the position, she is excited by the opportunities to continue first-class research in CF and to facilitate vital enhancements in the quality of care for patients across Canada.
“I have spent 24 years caring for adults with CF and am amazed and inspired by the improvements in survival and quality of life that have occurred over this time. This is a result of meticulous patient care and application of treatments developed through research discoveries. It is an enormous privilege to be the recipient of the Cystic Fibrosis Canada Chair in Adult CF Research and I am committed to working with my colleagues across Canada to further improve outcomes for our patients.”
– Dr. Elizabeth Tullis, Chair in Adult CF Research