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Walker Spotlight March

Welcome to the Walker Spotlight!  Each month this page will highlight incredible walkers and fundraisers from across Canada. 

This month, our walkers tell us why they walk to make cystic fibrosis history!

Check out their stories below. To be featured in an upcoming Walker Spotlight, please email us at walk@cysticfibrosis.ca

Stacey Nurse

My family, friends and I walk for my daughter Carys (ten) and all the other CF patients and families who work so hard to stay healthy every day. We advocate for them to have a better, longer quality of life and ultimately a cure for all.

Over the last four years Carys has been lucky enough to experience a miracle drug known as Kalydeco that has changed her quality of life and is as close to a cure as you can get. We want to advocate for other CF patients so that they can have the same opportunity as our daughter.

I truly believe that we are so close to a real cure for CF and want to be able to tell Carys someday that a cure is found. 

Thanks to all of our family and friends who have also taken this journey with us to find that cure. That is why we all walk to make CF history!

 

Sherry Lumsden

Back in the '80's, CF Kids went to summer camp.  CF campers climbed mountains, canoed, swam, sang, had fun just like any other kid, the difference was each morning started with physio. In 1989, scientists discovered a breakthrough, the first disease causing gene had been identified. The news was announced at camp, everyone was so excited, it gave us all hope!  In the 80's, the average life expectancy was 12, now it's 32 with many CF adults are living well into their 50's. Donations to fund this research made that happen. More research found an antibiotic-resistant bacteria that was transferable, sadly CF campers could no longer be in the same room together and CF camp was cancelled!  Research is essential, so is awareness.  Spread the word about CF by telling your friends and family to donate so Kallen can grow up to be an old lady like me.

 

Meherji Mistry

Why do I walk to make Cystic Fibrosis history? It’s a disease that affects one of our basic human instincts – the ability to breathe with ease. I can’t imagine coping with such a symptom for a short period of time, let alone living with it all my life. While I do not personally know anyone affected, I hate to see children suffer. I walk because CF patients are heroes in their own right. Not only are they prone to lung diseases and breathing problems, they withstand intense treatments, medications and other strenuous therapies that impact their daily lives. I walk to raise awareness, to raise funds and to support my heroes.  

 

 

 

lisA Lockett

I have been involved in the Walk to Make Cystic Fibrosis History for 15 years because my beautiful and courageous daughter, Melissa Powell, needs a cure!!  She battles this disease and all it comes with daily and it is really hard some days to feel helpless!!  Her whole family supports her but ultimately we support the hope for a better future for all those who have CF!!!

 

 

 

 

Macrina perron

I walk to make Cystic Fibrosis History because I CAN. As a CF parent there are literally 100's of things that are out of your control, but awareness, and fundraising, we CAN do! 

With an illness that is SO isolating, once a year we are united and together doing what we CAN to make CF History!

I walk for them!

 

 

Check out our past Walker Spotlights below:

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