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Volunteer Advocate
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Archive for July, 2018

The hope for Orkambi is strong all across Canada

Summer time – it brings so much hope for our family! The hope for new experiences at camp, hope for sunny days at the beach,…

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Tips on how to manage pain with CF

With chronic illness often comes pain and fatigue. Today, CFers share their best advice for coping with pain when you have cystic fibrosis. “So many…

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Spotlight: Ron Anderson

What’s your involvement with CF Canada (are you a volunteer, donor, event organizer, participant etc.)? I’ve been volunteering with CF Canada for more than 15…

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Spolight: Cassidy’s Lemonade

Today, we are pleased to introduce Cassidy of the Evans family (Jesse, Kimberly, Cassidy & Lucia Evans). CF champion Cassidy explains how and why she…

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Chronic Illness and Media

Educating people about cystic fibrosis, a rare and invisible illness, is an essential but long process. Media can play an important role in depicting what…

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Spotlight: Mario and Luca Lavorato

Earlier this summer, we have announced our partnership with NOGU, founded by two incredibly creative members of our community, Mario and Luca Lavorato. Today we…

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Spotlight: Gianna Nero

Congratulations to The Nero family for being presented with the National Breath of Life® Award at the Walk to Make Cystic Fibrosis History in Sudbury…

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Cystic Fibrosis & Friendships

Having cystic fibrosis affects the day to day life and sometimes even relationships and friendships. As we know, friends can be our number one supporters,…

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Growing Older With CF

Canadians with cystic fibrosis born today have an estimated median survival age of over 50. Because of research and medical advancement, they live longer and…

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