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Volunteer Advocate
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Archive for March, 2019

Spotlight: Kari Trethewey

Kari is a volunteer for CF Canada since 2015. In this interview, she shares her commitment for the Walk to Make Cystic Fibrosis History. What’s your…

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Comments round up: CF Canada answers your questions about a recent Orkambi update

Cystic Fibrosis Canada recently shared an update about changes to public access to Orkambi in various provinces. The governments of Saskatchewan, Alberta and Ontario announced…

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Mikayla Bianchin: My Collaboration With Inkbox

My name is Mikayla Bianchin, I am 18 years old and I currently attend Sheridan College for Illustration. I live with cystic fibrosis alongside my…

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CONNECTIONS WINTER 2019

Cystic Fibrosis Canada is proud to publish the winter 2019 edition of Connections magazine! It is published online only. In this edition, we introduce our…

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Living with an unpredictable disease

When you have CF, life can often be unpredictable. A simple cold can turn into an infection and an infection can lead to a long…

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Practical Tips to Stay Organized during March Break – Caregivers Edition

March Break is such a fun time of year! Children are on break from school, and some parents /guardians take vacation time to spend it…

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A Forum on Rare Diseases in Quebec

On February 22, in Montreal, Cystic Fibrosis Canada, in collaboration with the Alliance des patients pour la santé and the Regroupement québécois des maladies orphelines (RQMO),…

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