All Covid-19 updates and resources can be found here: COVID-19 INFORMATION FOR CF COMMUNITY
Skip To Content
Volunteer Advocate
cf insights cf insights

Archive for October, 2020

Turning challenging times into a literal, and interactive, challenge

As we near the end of this year we have by now heard a certain phrase mentioned numerous times, but repetition hasn’t made it any…

View Full Post

Advocacy Update & Latest News from Cystic Fibrosis Canada: September 25

Please see below for the latest news and advocacy updates from Cystic Fibrosis Canada this week: #CFCantWait: ADVOCACY UPDATES Cystic fibrosis Clinicians Take a Stand…

View Full Post

Canada, what are you waiting for?

When a recent Canadian study demonstrated the dramatic life-saving benefits of the cystic fibrosis drug, Trikafta, Cystic Fibrosis Canada intensified our calls to the government…

View Full Post

Advocacy Update & Latest News from Cystic Fibrosis Canada: August 31

Please see below for the latest news and advocacy updates from Cystic Fibrosis Canada this week: #CFCantWait: ADVOCACY UPDATES 4,163 People Join Cystic Fibrosis Canada…

View Full Post

Explained: the PMPRB’s impact on access to CF medicines and what you can do to help

The Patented Medicine Prices Review Board (PMPRB) and its proposed draft guidelines have become a major concern in the Canadian cystic fibrosis (CF) community. This…

View Full Post

Advocacy Update & Latest News from Cystic Fibrosis Canada: July 10

Please see below for the latest news and advocacy updates from Cystic Fibrosis Canada this week:  #CFCantWait: ADVOCACY UPDATES Cystic Fibrosis Canada’s Position on the…

View Full Post

Advocacy Update & Latest News from CF Canada: June 26

As more provinces are beginning to reopen as a part of the COVID-19 provincial reintegration plans, we hope that you are staying safe and well….

View Full Post

Faces of a Clinical Trial – Jenna Coombs

Name: Jenna Coombs Province you live in: New Brunswick   How many clinical trials have you participated in: 1   Describe yourself in one word:…

View Full Post

pCPA Negotiations for CF Modulators: What Does this Mean for Access?

The pCPA has agreed to begin negotiations with Vertex Pharmaceuticals? What does that mean?  This means the public drug plans – those provided by the…

View Full Post