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Advocacy Posts

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Four Ways You Can Help Get Access to Life-Saving CF Medicines Now

It’s CF Awareness Month! Help Canadians with cystic fibrosis access the miracle drug, Trikafta, ASAP!. From the #CFcantwait Provincial Meeting Challenge, to the Walk to…

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The Advocacy Brief – Issue #2 (April 27)

Access to Modulators in Canada Updates The CF Can’t Wait Provincial Meeting Challenge is off to a great start Advocates across Canada have already held…

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Sandy Stevens

Advocate Spotlight: Sandy Stevens

1. Name: Sandy Stevens 2. Province: Alberta 3. Connection to CF: Daughter with CF 4. Years advocating: 3+ years 5. Why did you get involved…

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The Advocacy Brief – Issue #1

Welcome to the first issue of Cystic Fibrosis Canada’s newsletter dedicated to advocacy. We’ll bring you the latest news on accessing modulators in Canada, updates…

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Trikafta commitments

Advocacy‌‌ ‌‌updates‌‌ ‌‌and‌‌ ‌‌latest‌‌ ‌‌news‌‌ ‌‌-‌‌ ‌‌March 5

Trikafta’s Progress through the Canadian drug review and reimbursement system Submissions to review bodies CADTH and INESSS Cystic Fibrosis Canada has sent a submission on…

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Advocacy‌ ‌updates‌ ‌and‌ ‌latest‌ ‌news‌ ‌-‌ ‌February 12

Trikafta review timeline updates Trikafta continues through the Canadian drug review & reimbursement process, currently under review with Health Canada, CADTH and INESSS. CADTH has…

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Advocacy updates and latest news – January 29

Read the latest advocacy updates from Cystic Fibrosis Canada. Trikafta Review: Making CF Voices Heard Thanks to all of you who filled out our community…

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Patient Survey to Inform Trikafta Drug Review

As the life changing cystic fibrosis medicine, Trikafta, continues to rapidly move through Canada’s drug review and reimbursement system, Cystic Fibrosis Canada is conducting a…

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CFCANTWAIT: ADVOCACY UPDATES Rapid Review of Trikafta In Progress Trikafta has been formally accepted for review by Health Canada and their website has been updated…

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