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Advocacy Posts

#CFcantwait Advocacy Update

Latest news On Friday 14 February, Cystic Fibrosis Canada made a formal submission to the PMPRB calling on the federal government to halt the implementation…

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Questions and Answers Related to our Advocacy Work

We recently invited our online community to ask us questions about our advocacy work. We responded in the comments sections. We made a round-up of…

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Access to medicines for cystic fibrosis

All for fair drug prices and access to medicines

A life-changing drug that can help 90% of people living with cystic fibrosis is stuck in a complicated web of Canadian bureaucracy. Trikafta has been…

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Advocacy Update From the Desk of the CEO

Improving access to the new life-changing cystic fibrosis (CF) medications is a priority for Cystic Fibrosis Canada (CF Canada) and we have been working hard,…

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Advocating for Change: Together we’re Stronger

Cystic fibrosis is a fatal disease that affects those who live with it in common yet unique ways. Currently, there is no cure. At Cystic…

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Advocacy in Action: An Open Letter to the Right Honourable Justin Trudeau: Please Save my Life

Dear Prime Minister Trudeau: My name is Melissa Verleg and I am a 36 year old mother of two young boys from Vernon. I live…

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Whatever it takes; for myself, for my brother, and for everyone else living with CF

For most people, a cough is a temporary inconvenience. For me, and the thousands of other Canadians living with cystic fibrosis (CF), a cough is…

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Whatever it takes; for my daughter not to face this alone

Living in Canada, where many people receive the health care they need, is a privilege. But many people receiving care is not everyone – and…

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Whatever it takes; to be a mom for as long as I can

Many of us can relate to the daily stress and worry that comes with being a parent; scheduling play dates, juggling appointments, daily chores, making…

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