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Stories Posts

Food and CF – Caregivers’ Perspective

For a caregiver, understanding the needs of the person you care for is very important. As we highlighted earlier this month, food and nutrition are…

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Clinical trials: A CF parent’s perspective

My name is Lina Bhardwaj and my 13-year-old daughter Rianna lives with cystic fibrosis. Rianna was diagnosed at two months old and luckily, she’s been…

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Clinical trials: A patient’s perspective

My name is Mark Becker and I’m 36-years-old. I’m a secondary school teacher for students with autism and I live with my wife Ana and…

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Walk for Kadeem

My name is Kadeem Morgan, I’m 22 years old and live in Pickering, Ontario. I was diagnosed with cystic fibrosis at one year old. I…

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Walk for Emme and Erin

My name is Danielle Weil, I live in Brantford, Ontario, and I am the mom to two beautiful girls – my twin daughters Mary-Elizabeth (who…

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Walk for Audrey

My name is Audrey Boissonneault, I’m 18 years old, and I’m from St-Hyacynthe, Quebec. I was diagnosed with cystic fibrosis at two months old by…

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Walk for the Grover family

My name is Tammy Grover, and I live in Regina, Saskatchewan with my three children Jaydn, Jelena and Jenesis. Our story might be familiar to…

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Lessons Learned in Caregiving

According to the 2017 Canadian Cystic Fibrosis Registry Annual Data Report, over 4,300 Canadians attended CF clinics that year. But we know that our community…

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Organ Donation and cystic fibrosis

April is Organ Donation Awareness (or BeADonor) Month. Organ donation, specifically lung transplant, is a huge topic in our community and one that brings up…

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