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Volunteer Advocate
cf insights cf insights

Coping with the loneliness of CF

Living with a rare disease can be lonely. There are a limited number of people who share in your lived experience, and despite how hard…

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The 2018 North American Cystic Fibrosis Conference

The North American Cystic Fibrosis Conference (NACFC) is the largest event of its kind, bringing together physicians, nurses, researchers, multidisciplinary healthcare providers, and others connected…

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2018 Newborn Resource Kits

In early October Cystic Fibrosis Canada staff came together to assemble 100 Newborn Resource Kits which are designed to support families during the time of…

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Preparing for Cold Season with CF

Despite the beauty of the Canadian cold seasons, the climate can have a negative effect on the health of people with cystic fibrosis. This is…

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Late Summer Melancholy – Guest Post from Audrey

As usual, we can see the summer galloping away. Yes, it’s with great sadness that I must declare dehydration season over. Of course, this means…

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The do’s and don’ts of travelling with CF

Traveling with CF is not an impossible task. With the right to-do list, you can successfully prepare for some well-deserved vacations. Whether it is in…

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Spotlight: Stacy Hipkin

What’s your involvement with CF Canada (are you a volunteer, donor, event organizer, participant etc.)? I have sat on the Edmonton and Northern Alberta Board…

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Coughing with CF

One of the main symptoms of cystic fibrosis is the persistent cough. Coughing can often become uncontrollable and uncomfortable especially when it happens in public…

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On Tuesday, October 2, 2018, Cystic Fibrosis Canada was proud to attend the fourth annual Jehangir Saleh Lecture at Ryerson University: The Meaning of Health….

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