Getting Trikafta Saved my Life
Samantha Roy, lives with cystic fibrosis, was granted compassionate access to Trikafta after her health declined considerably as a young adult. She shares how this…
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David Van Beers: A Legacy of Hope
David Van Beers grew up in a family of six living on a farm in Ontario, the family had a busy household with four boys. David was the eldest, and he was born with cystic fibrosis (CF). Despite this diagnosis his childhood was similar to any other child; playing sports, enjoying games with friends – the only difference was the extra precautions and treatments he needed to do because of his CF.
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The Advocacy Brief – Issue #3 (May 18)
Welcome to your May 18th 2021 issue of The Advocacy Brief. Before we jump into the latest advocacy updates, including news of the review of…
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Four Ways You Can Help Get Access to Life-Saving CF Medicines Now
It’s CF Awareness Month! Help Canadians with cystic fibrosis access the miracle drug, Trikafta, ASAP!. From the #CFcantwait Provincial Meeting Challenge, to the Walk to…
View Full PostThe Advocacy Brief – Issue #2 (April 27)
Access to Modulators in Canada Updates The CF Can’t Wait Provincial Meeting Challenge is off to a great start Advocates across Canada have already held…
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Advocate Spotlight: Sandy Stevens
1. Name: Sandy Stevens 2. Province: Alberta 3. Connection to CF: Daughter with CF 4. Years advocating: 3+ years 5. Why did you get involved…
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The importance of organ donors, from a recipient’s perspective
Kadeem Morgan was diagnosed with cystic fibrosis shortly after his first birthday, news that was devastating for his close-knit family. Despite living with cystic fibrosis, he grew up enjoying his childhood, embracing his family’s love of food and music.
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Going Further for Cystic Fibrosis Research
Under the mentorship of Dr. Silvia T. Cardona, professor and Associate Head of Microbiology (Graduate Affairs) at the University of Manitoba, we are a small…
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National Volunteer Week 2021: The Value of One, The Power of Many
From the beginning, volunteers have played a central role in the Cystic Fibrosis Canada story. Over 60 years ago, Cystic Fibrosis Canada was founded by the parents of children living with cystic fibrosis, bringing hope to the many families impacted by cystic fibrosis in Canada. Over time we have grown, and our mission has evolved to reflect the changing needs of our community, but the role of our dedicated volunteers has remained vital to the work we do.
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