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Volunteer Advocate
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Thank You to our Volunteers

During National Volunteer Week, we recognize and are thankful for the many ways our volunteers contribute, driving progress for people in Canada impacted by cystic…

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Meet the Team: Ian Thompson

Meet Ian: a father, amateur golfer, angler, and political junkie. Ian and his wife, Donna, lost their two children to cystic fibrosis (CF). Years after…

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Community Reviewers help Cystic Fibrosis Canada Fund New Research

One of the guiding principles of Cystic Fibrosis Canada’s Strategic Plan is to ensure that our work resonates with the Canadian cystic fibrosis (CF) community….

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Advocate Spotlight – Amanda Bartels

Name: Amanda BartelsProvince: AlbertaConnection to CF: Woman (wife and mom) with CFYears advocating: Advocating for just over 2 years Why did you get involved with…

Meet Arash

I grew up in Iran in a warm and friendly home with my parents, sister, and twin brother. Both my brother and I were diagnosed…

The cystic fibrosis gene discovery is a Nobel Prize worthy discovery 

On Tuesday May 9, 1989, Cystic Fibrosis Canada-funded researcher, Dr. Lap-Chee Tsui, and his team at the Hospital for Sick Children in Toronto, together with…

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Meet the Team: Maggie McIlwaine

Meet Maggie: an avid traveler with a passion for the outdoors, and a 48-year history working in cystic fibrosis (CF) clinics. Since her time working…

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The Advocacy Brief – Issue #9

Welcome to your February 1, 2022, edition of The Advocacy Brief. Updates on Access to Trikafta Looking ahead to 2022 2022 is shaping up to…

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Exercise and CF

While exercise has long been a recommended component of routine cystic fibrosis (CF) care, a recently published international, multicenter study co-funded by Cystic Fibrosis Canada,…