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Lorna McEwan with Trikafta

Trikafta has given me a second lease on life.

Lorna McEwan is a 61 year old Cystic Fibrosis Warrior and advocate who started on Trikafta in 2021. This is an account of her experience…

Using the Cystic Fibrosis Program for Individualized Therapy (CFIT) to enable therapy discovery for those people with rare CF-causing mutations

It has been an exciting year for Canadians impacted by cystic fibrosis (CF), particularly now with Trikafta being funded in all jurisdictions in Canada. However,…

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The Advocacy Brief – Issue #8 – December 20, 2021

Welcome to your December 20, 2021, edition of The Advocacy Brief. Cystic Fibrosis Canada’s Advocacy Team wishes you and your family a safe, healthy and…

Advocate Spotlight – Jen Harbin

Name: Jen Harbin Province: Nova Scotia Connection to CF: Daughter with CF Years advocating: 2 years Why did you get involved with CF Canada’s advocacy…

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The Advocacy Brief- Issue #7- November 25, 2021

From coast to coast Trikafta is finally here! Every jurisdiction in Canada has now committed to publicly funding Trikafta. This week, the final jurisdiction, Nunavut,…

From the desk of the CEO: you made change happen.

As we enter final months of 2021, I am reflecting on what an extraordinary year this has been. We continued to live in an extraordinary…

CF Canada and the Cystic Fibrosis Trust team up for CLIMB-CF Study: Testing Home Monitoring in Young People

Research about home monitoring in young people with cystic fibrosis (CF), funded in part by Cystic Fibrosis Canada and the Cystic Fibrosis Trust, and co-authored…

Trikafta is coming to NWT and NIHB

Special CF Canada Bulletin: Northwest Territories and NIHB to fund Trikafta

We’re pleased to share that the Government of Northwest Territories has announced it will fund Trikafta for eligible people living with cystic fibrosis. Further great…

Cystic Fibrosis Canada continues research into COVID-19 and cystic fibrosis with new grant from the Canadian Institutes of Health Research (CIHR)

To continue the important global research into COVID-19 and cystic fibrosis (CF) that began in March of 2020, Dr. Anne Stephenson, Medical Director of Cystic…