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Patient Survey to Inform Trikafta Drug Review

As the life changing cystic fibrosis medicine, Trikafta, continues to rapidly move through Canada’s drug review and reimbursement system, Cystic Fibrosis Canada is conducting a…

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A look ahead to 2021

It is with optimism that we welcome the year 2021. With this new year comes our renewed pledge to go even further for people living with…

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ADVOCACY UPDATE & LATEST NEWS FROM CYSTIC FIBROSIS CANADA: JANUARY 8

CFCANTWAIT: ADVOCACY UPDATES Rapid Review of Trikafta In Progress Trikafta has been formally accepted for review by Health Canada and their website has been updated…

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All staff thank you to Kin

Advocacy Update & Latest News from Cystic Fibrosis Canada: December 11

#CFCANTWAIT ADVOCACY NEWS Trikafta submission update A senior Health Canada official confirmed on a CF Canada webinar that as of December 4, 2020, Health Canada…

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For a lifetime of treasured moments

When living with a rare and fatal disease like cystic fibrosis (CF), simple moments of joy are extra special. As a result of generous donor…

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Advocacy Update & Latest News from Cystic Fibrosis Canada: November 21

Please see below for the latest news and advocacy updates from Cystic Fibrosis Canada this week: #CFCantWait: ADVOCACY UPDATES Trikafta to be Submitted to Health…

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Advocacy Update & Latest News from Cystic Fibrosis Canada: November 7

Please see below for the latest news and advocacy updates from Cystic Fibrosis Canada this week: #CFCantWait: ADVOCACY UPDATES House of Commons Standing Committee On…

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PMPRB position statement on the wait for life changing drugs

Canadian Cystic Fibrosis Community in Crisis: Latest Developments as Wait for Life Changing Drug Continues

Today we respond not only to the Patented Medicine Prices Review Board (PMPRB) guidelines and the House of Commons Standing Committee on Health (HESA) motion,…

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Shinerama Goes Virtual

Shinerama, Canada’s largest post-secondary fundraiser in support of Cystic Fibrosis Canada, took on a new virtual approach this year! We asked student volunteers from universities…

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