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PMPRB position statement on the wait for life changing drugs

Canadian Cystic Fibrosis Community in Crisis: Latest Developments as Wait for Life Changing Drug Continues

Today we respond not only to the Patented Medicine Prices Review Board (PMPRB) guidelines and the House of Commons Standing Committee on Health (HESA) motion,…

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Shinerama Goes Virtual

Shinerama, Canada’s largest post-secondary fundraiser in support of Cystic Fibrosis Canada, took on a new virtual approach this year! We asked student volunteers from universities…

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Advocacy Update & Latest News from Cystic Fibrosis Canada: October 24

Please see below for the latest news and advocacy updates from Cystic Fibrosis Canada this week:  #CFCantWait: ADVOCACY UPDATES Emergency all party meeting on access…

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Advocacy Update & Latest News from Cystic Fibrosis Canada: October 9

Please see below for the latest news and advocacy updates from Cystic Fibrosis Canada this week: #CFCantWait: ADVOCACY UPDATES Meeting with Minister Patty Hajdu On…

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Turning challenging times into a literal, and interactive, challenge

As we near the end of this year we have by now heard a certain phrase mentioned numerous times, but repetition hasn’t made it any…

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Advocacy Update & Latest News from Cystic Fibrosis Canada: September 25

Please see below for the latest news and advocacy updates from Cystic Fibrosis Canada this week: #CFCantWait: ADVOCACY UPDATES Cystic fibrosis Clinicians Take a Stand…

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Canada, what are you waiting for?

When a recent Canadian study demonstrated the dramatic life-saving benefits of the cystic fibrosis drug, Trikafta, Cystic Fibrosis Canada intensified our calls to the government…

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Advocacy Update & Latest News from Cystic Fibrosis Canada: August 31

Please see below for the latest news and advocacy updates from Cystic Fibrosis Canada this week: #CFCantWait: ADVOCACY UPDATES 4,163 People Join Cystic Fibrosis Canada…

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Explained: the PMPRB’s impact on access to CF medicines and what you can do to help

The Patented Medicine Prices Review Board (PMPRB) and its proposed draft guidelines have become a major concern in the Canadian cystic fibrosis (CF) community. This…

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