12 marathons in 15 days: a father runs for CF
From the 15th to the 29th of May, Cédric Bouillon, a father of three children, two of whom have cystic fibrosis (CF), ran 503 km…
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We’re on Instagram!
We’re very excited to announce that our official Instagram account is now live! Connecting with Canadians with cystic fibrosis (CF) is important to us and…
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CF Awareness Day on Parliament Hill
On Tuesday May 10th2016, the Northern and Eastern Ontario Regional staff assembled in our nation’s capital on Parliament Hill for a wonderful day of advocacy…
Read MoreAdvocacy in Action: Access to a Future
Not only can access to medicine mean life-changing results for those living with a rare disease, it can also make a world of difference for…
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Summer Fun Starts Now
Is it just us, or do the months keep going by faster and faster? With the end of June comes the end of the 2015/16…
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Spotlight: Darryl Hemstreet
The dedicated members of our community never cease to amaze us! As part of our Spotlight series, we’re pleased to feature some of the hardworking…
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CF Care: Parenting & CF
As the school year comes to a close across the country, many parents will soon find themselves spending more time with their children as summer…
Read MoreAdvocacy in Action: The Human Cost
John* has been taking Orkambi for the last two and a half years, starting as part of the clinical trial, rollover study and now through…
Read MoreA Day in My Shoes: Myles Lynch
Myles was diagnosed with cystic fibrosis (CF) when he was just one month old. At 16, Myles received at double lung transplant. Now 18, Myles…
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