Shiner of the Month – June 2016
Hello Shinerama Nation! We are so excited to announce the Shiner of the Month for June. We had plenty of excellent nominees, but one shiner…
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Advocacy in action: Simone’s story
My name is Simone McFee. I’m a 25-year-old woman from BC and I have cystic fibrosis (CF). As I’ve gotten older, this progressive disease has…
View Full PostFunding decision for ORKAMBI™ Delayed
The Canadian Agency for Drugs and Technologies in Health (CADTH) announced today that the submission for ORKAMBI™ (lumacaftor/ivacaftor) will be reconsidered at an upcoming meeting…
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Lung Repair in People with Cystic Fibrosis
A team of Cystic Fibrosis Canada-funded researchers led by Dr. Emmanuelle Brochiero from the CHUM Research Centre (CRCHUM) and University of Montreal received a $238,254…
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Spotlight: Nick Plasse
The dedicated members of our community never cease to amaze us! As part of our Spotlight series, we’re pleased to feature some of the hardworking…
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CF Care: Reproductive Health
If you have cystic fibrosis (CF), or have a partner with CF and are considering having children, you may find yourself struggling with several different…
View Full PostAdvocacy in action: Rae-Anne’s story
My name is Rae-Anne Davidson. I am 28 years old and from Ayers Cliff, Quebec. I was diagnosed with Cystic fibrosis (CF) at the age…
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12 marathons in 15 days: a father runs for CF
From the 15th to the 29th of May, Cédric Bouillon, a father of three children, two of whom have cystic fibrosis (CF), ran 503 km…
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We’re on Instagram!
We’re very excited to announce that our official Instagram account is now live! Connecting with Canadians with cystic fibrosis (CF) is important to us and…
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