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The Top 10 Articles and CF Stories of 2018

2018 was a great year for storytelling within our community. We discussed a wide range of CF topics from transplantation, to stories of personal resilience and experiences, to very informational and practical content such as the history of our newborn resource kits, and academic financial support opportunities. Now that the year is over, we’re reviewing the top articles that our community members read in 2018. Check them out below:

  • CF Champion – Kelly Ann Quinlan

Meet Kelly Ann Quinlan, 19 years old. Kelly Ann was diagnosed with cystic fibrosis at birth. In this blog, she talks about her family, the impact of CF and her incredible CF transplant journey. She details how her support system of friends and family have helped her through her journey.

Read more: https://www.cysticfibrosis.ca/about-us/cf-champions/kelly-ann-quinlan

  • Higher Education Financial Support Opportunities for the CF Community

Post-secondary education can be expensive, which is why we gathered some financial support opportunities for Canadians in the CF community seeking higher education. Applications for various scholarships, bursaries, grants, and financial awards usually open early fall for the next school year, so why not get a head start?

Read more: http://www.cysticfibrosis.ca/blog/higher-education-financial-support-opportunities-for-the-cf-community/

  • Julie’s Story

Cystic Fibrosis Canada was honoured to share Julie Depatie’s story. Julie was a CF fighter and advocate. Despite her many challenges, Julie used social media to raise awanress of CF, and created the “Cystic Fibrosis, 31 days of May” initiative in which she posted daily about her life during May, CF awareness month. Sadly, she lost her battle in 2016.

Read more: http://www.cysticfibrosis.ca/blog/julies-story/

  • Spotlight: Jeff Barrick and Lyndon Whitlock, Two Creative Fundraisers for CF Canada

We are always amazed by our supporters’ creativity when it comes to fundraising! We featured two of our fundraisers, Jeff Barrick (age 16) and Lyndon Whitlock (age 32). For the past two years, Lyndon has run fundraisers for CF Canada where if a goal is reached, he gets a tattoo. This past year, he has challenged his student Jeff to raise money for CF Canada. And guess what? Jeff succeeded! Check out their interview and learn more about Lyndon’s creative fundraiser below!

Read more: http://www.cysticfibrosis.ca/blog/qa-with-jeff-barrick-and-lyndon-whitlock-fundraisers-for-cf-canada/

  • The Grover Family: A story of Resilience

Tammy Grover, a single mother of three children, two of whom have CF, was eager to share her inspiring family story with the community. Tammy’s resiliency and determination to push forward is so inspiring.

Read more: http://www.cysticfibrosis.ca/blog/the-grover-family-a-story-of-resilience/

  • 2018 Newborn Resource Kits

In early October 2018, Cystic Fibrosis Canada staff came together to assemble 100 Newborn Resource Kits, which are designed to support families during the time of a new diagnosis of cystic fibrosis. This post details the history of the kits, and the support they provide to families.

Read more: http://www.cysticfibrosis.ca/blog/2018-newborn-resource-kits/

  • Anne-Sophie Barrette: How Can I Not Keep Smiling?

Anne‑Sophie is one of five participants of CF Canada’s Holiday Giving Campaign: Tough Questions. She is an inspiring 26 year old CF Champion and two-time double lung transplant survivor. In her own words, she tells her story and explains why a donation to Cystic Fibrosis Canada means so much to her.

Read more: http://www.cysticfibrosis.ca/blog/anne-sophie-barrette-how-can-i-not-keep-smiling/

  • Connections Winter 2018

This blog announced the Winter 2018 edition of Connections magazine. This edition is full of the latest in research, inspirational stories, and fundraising success from across the country! Check it out if you  missed it!

Read more: https://www.cysticfibrosis.ca/blog/connections-winter-2018/

  • Spotlight: Nicole Filipow

Nicole Filipow is a force to be reckoned with! As the sister of someone living with CF, she knows all too well the heartache of cystic fibrosis. This Q&A details her volunteer experience with CF Canada, her advocacy for Canadians with CF, and her motivation to pursue CF research (microbiology) in her academic career.

Read more: https://www.cysticfibrosis.ca/blog/spotlight-nicole-filipow/

  • Coughing with CF

One of the main symptoms of cystic fibrosis is the persistent cough. Coughing can often become uncontrollable and uncomfortable especially when it happens in public spaces. However, as coughing is the most basic airway clearance technique, you shouldn’t avoid it. You can help ease the cough before it becomes unmanageable, and some of our community members shared their tips on how to do just that.

Read more: http://www.cysticfibrosis.ca/blog/coughing-with-cf/

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