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Volunteer Advocate

Adult Cystic Fibrosis Advisory Committee

The Adult Cystic Fibrosis Advisory Committee (ACFAC) is a standing committee of Cystic Fibrosis Canada. Members include up to 15 adults with cystic fibrosis from across the country and two healthcare professional advisors. The committee provides perspective and advice on CF-related issues, and advocates for public policies and programs to help people with cystic fibrosis. Members also foster and support an engaged and knowledgeable CF community.

Are you an adult with CF in Canada? Would you like to contribute to the work of Cystic Fibrosis Canada on issues important to adults living with CF? If interested, please consider applying to be part of our Adult CF Advisory Committee. For more information, please contact: advocacy@cysticfibrosis.ca  

Megan Parker

Megan Parker lives in Calgary, AB with her husband and two 3-year old sons, Charlie and Desmond. She works as an Occupational Therapist.

Mike Amato

Mike Amato is 30 years old and has two copies of the F508del mutation. He can proudly state that he has cystic fibrosis because living with CF has taught him valuable lessons throughout his life. Mike works as a Medical Laboratory Technologist and is also a 2nd degree blackbelt Tae Kwon Do instructor. He recently completed a Master’s Degree of Medical Science specializing in Pathology.

Robert Burtch

Rob is 38 and was diagnosed at birth. He has had several surgeries on his GI track including removal of his colon. In January of 2014 Rob received the gift of life in the form of a double lung transplant. Rob has volunteered as an Ambassador for CF Canada for over 25 years and was the recipient of the Michelle Breakwell Award in 2002.

Rob has been married for 15 years and has a step daughter who is 16. He also has 2 dogs and a cat. Rob is currently working for an outdoor retail store in Barrie.