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CYSTIC FIBROSIS CANADA CELEBRATES 15TH ANNIVERSARY OF NATIONAL FUNDRAISER
May 1, 2019

CYSTIC FIBROSIS CANADA CELEBRATES 15TH ANNIVERSARY OF NATIONAL FUNDRAISER
The Walk to Make Cystic Fibrosis History Takes Place on Sunday, May 26th

TORONTO (May 1, 2019) – Cystic Fibrosis Canada is celebrating the 15th anniversary of its signature fundraising event, The Walk to Make Cystic Fibrosis History. Each year, the Walk is held on the last Sunday in May, Cystic Fibrosis Awareness Month. This year’s Walk will take place on Sunday, May 26 in over 70 communities across Canada.

The Walk to Make Cystic Fibrosis History has been the organization’s flagship national event since 2005 and has raised over $31 million in peer-to-peer fundraising to support CF research, innovation and care. Funds raised from the event are dedicated to improving the lives of the 4,300 Canadians who live with CF, research projects with the greatest potential to advance understanding and treatment of cystic fibrosis, and to improve the quality of life for CF patients.

“We are thrilled to celebrate 15 years of the Walk as a national event for Cystic Fibrosis Canada,” said Bryna Dilman, Executive Director, National Events at Cystic Fibrosis Canada. “We are able to celebrate this milestone because of the strong community of supporters who participate every year with the common goal to end cystic fibrosis. The sense of community at our Walks is unlike anything I have seen before.”

In celebration of the 15th anniversary, The Walk to Make Cystic Fibrosis History is travelling to new heights this year, with three international treks to Machu Picchu, Peru. The week long journey is organized through Charity Challenge, the world's leading tour operator, running overseas fundraising challenges.

More than 70 adventurers will fundraise and trek for this once in a lifetime journey across the Peruvian Andes to one of the Seven Wonders of the World, trekking up Machu Picchu. Each participant must meet a minimum fundraising goal of $4,200 to be eligible for the trek.

Cystic fibrosis is the most common fatal genetic disease affecting Canadian children and young adults. It is a multi-system progressive disease that affects mainly the lungs and the digestive system. There is no cure, however with ongoing support from donors, researchers are closer than ever to uncovering the mysteries that still surround the fatal disease. This year marks the 30th anniversary of the discovery of the cystic fibrosis gene, cystic fibrosis transmembrane conductance regulator (CFTR), discovered in Toronto by researchers with funding from Cystic Fibrosis Canada.

Canadians interested in joining a walk can register at cysticfibrosis.ca/walk.

Cystic Fibrosis Canada is grateful for the generosity of partners Kin Canada and Vertex who are supporting the Walk.

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Cystic fibrosis
Cystic fibrosis is the most common fatal genetic disease affecting Canadian children and young adults. It is a multi-system progressive disease that affects mainly the lungs and the digestive system. In the lungs, where the effects are most devastating, a build-up of thick mucus leads to progressive loss of respiratory function. Mucus also builds up in the digestive tract, making it difficult to digest and absorb nutrients from food. As improved therapies have helped to address the malnutrition issues, ultimately most deaths related to cystic fibrosis are due to lung failure. There is no cure.

 

Cystic Fibrosis Canada
Cystic Fibrosis Canada is one of the world’s leading charitable organizations committed to finding a cure for cystic fibrosis and is an internationally-recognized leader in funding CF research, innovation, and clinical care. We invest more funding in life-saving CF research and care than any other non-governmental agency in Canada. Since 1960, Cystic Fibrosis Canada has invested more than $258 million in leading research, care and advocacy, resulting in one of the world’s highest survival rates for Canadians living with cystic fibrosis. For more information, visit cysticfibrosis.ca.

 

For more information, contact:
Nicole Young, Director, Corporate Communications
Cystic Fibrosis Canada
Tel: 416-485-9149 ext. 235
Tel: 1-800-378-2233 ext. 235
Email: nyoung@cysticfibrosis.ca 

Jennifer Stranges, Associate, Corporate Communications
Cystic Fibrosis Canada
Tel: 416-485-9149 ext. 290
Tel: 1-800-378-2233 ext. 290
Email: jstranges@cysticfibrosis.ca 


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