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Volunteer Advocate

News

Cystic Fibrosis Canada Partners with NOGU
June 12, 2018

Jewelers with cystic fibrosis donate 50 percent of sales to Cystic Fibrosis Canada

TORONTO (June 12, 2018) – Cystic Fibrosis Canada is pleased to announce its national partnership with Canadian based jewelry company, NOGU. Mario and Luca Lavorato, founders of NOGU and both diagnosed with cystic fibrosis (CF) at birth, have pledged to donate 50 percent of gross sales from the company’s Kite Collection to Cystic Fibrosis Canada.

Available today, NOGU’s Kite Collection consists of a crystal charm bracelet in eight variations, including 18 karat gold, rose gold, silver, and gunmetal, each with the Cystic Fibrosis Canada kite logo as the charm. The bracelets start at $50 (CAD) and can be purchased at www.nogu.ca/kite. For every Kite bracelet sold, 50 percent of sales will be donated to Cystic Fibrosis Canada in support of research, clinical care, and advocacy for those living with CF.

“We are thrilled about the partnership with NOGU,” said Jennifer Nebesky, Chief Marketing and Communications Officer at Cystic Fibrosis Canada. “Mario and Luca are living proof of the progress Canadians with cystic fibrosis are making as a result of advances in research and clinical care. We are so grateful for their generosity”.

“It has always been a dream of ours to give back to the CF community,” said Mario and Luca Lavorato, founders of NOGU. “We are grateful that the strides made by Cystic Fibrosis Canada have afforded us the stability in our health to do what we love, support a cause that is so close to us, and to help create a world without cystic fibrosis.”

NOGU was founded by Mario Christian and Luca Daniel Lavorato in 2012. The brothers are the founders of the award-winning family of brands that include Joseph Nogucci, NOGU and Daniel Christian Tang.

Donations from the Kite Collection will be invested in research, care and advocacy efforts for cystic fibrosis in Canada. For more ways to get involved and help to support Canadians living with cystic fibrosis please visit www.cysticfibrosis.ca.

 

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Cystic Fibrosis

Cystic fibrosis is the most common fatal genetic disease affecting Canadian children and young adults. It is a multi-system disease that affects mainly the lungs and the digestive system. In the lungs, where the effects are most devastating, a build-up of thick mucus causes severe respiratory problems. Mucus also builds up in the digestive tract, making it difficult to digest and absorb nutrients from food. As improved therapies have helped to address the malnutrition issues, ultimately most deaths related to cystic fibrosis are due to lung disease. There is no cure.

 

Cystic Fibrosis Canada

Cystic Fibrosis Canada is one of the world’s top three charitable organizations committed to finding a cure for cystic fibrosis and is an internationally-recognized leader in funding CF research, innovation, and clinical care. We invest more funding in life-saving CF research and care than any other non-governmental agency in Canada. Since 1960, Cystic Fibrosis Canada has invested more than $253 million in leading research, care and advocacy, resulting in one of the world’s highest survival rates for Canadians living with cystic fibrosis. For more information, visit cysticfibrosis.ca.

 

For more information, contact:
Nicole Young, Director, Corporate Communications
Cystic Fibrosis Canada
Tel: 416-485-9149 ext. 235
Tel: 1-800-378-2233 ext. 235
E-mail: nyoung@cysticfibrosis.ca 

Jennifer Stranges, Associate, Corporate Communications
Cystic Fibrosis Canada
Tel: 416-485-9149 ext. 290
Tel: 1-800-378-2233 ext. 290
E-mail: jstranges@cysticfibrosis.ca 


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