Did you know that your version of Internet Explorer is out of date?
To get the best possible experience using our website we recommend downloading one of the browsers below.

Internet Explorer 10, Firefox, Chrome, or Safari.

Volunteer Advocate
Home/ About CF/Living with Cystic Fibrosis

Living with Cystic Fibrosis

The Living with Cystic Fibrosis section is for those who are parents, caregivers or patients newly diagnosed with cystic fibrosis as well as those who have had cystic fibrosis for a while and want to know more than “just the basics”.

Reviewing these main areas can benefit everyone, specifically physiotherapy treatment options and overall health and wellness.

You can also jump to sections that can help with age specific concerns.

Upcoming Events
April 12, 2019
Raise A Glass at Fort Gibralter

Raise A Glass Wine and Beer Tasting Evening at fort Gibralter

This year we’re looking forward to hosting you in the historic Great Hall in Fort Gibralter! This elegant venue, founded in 1809, boasts a central St. Boniface location and free parking for our guests. If you haven’t attended an event at Fort Gibralter this is the evening to experience its charm.

We’re bringing back some of the region’s best breweries, and in keeping with the heritage spirit of the venue, we'll showcase Canadian wines, and our delicious bites will be locally-sourced. We are also refreshing our music and new activities keep evening lively - a bonfire and smores cap off the evening!

 

Read More
CF Champions
Bonnie Brillinger
Age 42, London, Ontario

My name is Bonnie Brillinger. I am now at the lucky age of 42. I was diagnosed with cystic fibrosis at 10 months of age. My biggest challenge with cystic fibrosis has been the insecurity of what the disease holds for my future.

Read More
Cystic fibrosis occurs when a child inherits two defective copies of the gene responsible for cystic fibrosis (one from each parent).