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Volunteer Advocate

Blog & News

Photo of Shannon Price

Meet Shannon Price

My name is Shannon Price. I’m incredibly passionate about my wonderful family, my dogs Apple and Sammy, cooking, movies, music, reading, and being outdoors.

While all of these things fill my soul, they are interspersed around my daily cystic fibrosis (CF) treatments that are incredibly time consuming, but the very reason why I am still alive today. 

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Spring update from the CEO

Spring update from the desk of the CEO

As temperatures slowly warm and the days get a little longer, we at Cystic Fibrosis Canada are feeling more ready than ever to make positive change for our community.

We’re pushing further in every aspect of our work to achieve the progress the Canadian cystic fibrosis community needs and deserves.

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The Advocacy Brief


Welcome to the first issue of Cystic Fibrosis Canada’s newsletter dedicated to advocacy. We’ll bring you the latest news on accessing modulators in Canada, updates on Cystic Fibrosis Canada’s advocacy initiatives and details on how you can get involved. 

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On average, a person with cystic fibrosis spends the equivalent of four months of full-time work doing life-sustaining treatments every year. 65% of Canadians newly diagnosed with cystic fibrosis in 2019 were diagnosed through newborn screening Of the Canadians with CF who died in the last three years, half were under 34 years of age
Upcoming Events
April 25, 2021
Outrun CF 2021

Durham's Outrun CF is going virtual again this year! Register today!

*See event listing for more details*

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April 30, 2021
Toronto & District Walks- Virtual Trivia Night

We are excited to announce that Ryerson's Engineering Spirit and Orientation Committee will be hosting a trivia game night for all Walk participants!

Join us for an opportunity to connect with our Toronto District Walk community, meet our local Shinerama team, win some prizes and have fun! 

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CF Champions
Age 18, Charlottetown (PEI)

Cameron Davis was given the ultimate opportunity. He was selected out of hundreds of athletes to carry the flag for P.E.I at the 2019 Canada Winter Games opening ceremony that took place in Red Deer, Alberta.

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