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Volunteer Advocate

Blog & News

A LOOK AHEAD TO 2021

A LOOK AHEAD TO 2021

We’re hitting the ground running in 2021 and are excited to share our plans for the year. Accessing life changing medications will remain a key focus, as will improving quality of care, continuing vital research and offering support services. We also want to learn more about our community’s priorities so we can have meaningful impact. 

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ADVOCACY UPDATE & LATEST NEWS FROM CYSTIC FIBROSIS CANADA: JANUARY 8

ADVOCACY UPDATE & LATEST NEWS FROM CYSTIC FIBROSIS CANADA: JANUARY 8

Recent advocacy highlights from CF Canada include the rapid progress Trikafta is making through the Canadian drug review and reimbursement system, a soon to be launched patient input survey for the CADTH review and letters sent to provincial Health Ministers advocating for early access to COVID19 vaccines for people living with CF. 

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Trikafta pills

LIFE CHANGING TREATMENT, TRIKAFTA, IS ADVANCING THROUGH THE CANADIAN DRUG APPROVAL PROCESS

Today the cystic fibrosis story is moving closer to transformational change, with access to a long-awaited, life-changing therapy now advancing through the Canadian drug approval process. CADTH is now reviewing the cystic fibrosis (CF) drug Trikafta.

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Cystic fibrosis occurs when a child inherits two defective copies of the gene responsible for cystic fibrosis (one from each parent). Lung transplantation is the only definitive treatment option for cystic fibrosis Cumulatively, CF patients attended over 16,500 clinic visits in 2013
Upcoming Events
January 30, 2021
Capes & Crowns Virtually Enchanted

Capes & Crowns Virtually Enchanted

Raffles * Draws * 50/50 * Wine basket

Purchase raffle tickets for your chance to win!

Draw date: Saturday, Jan 30

Tickets available very soon! Stay tuned :)

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January 31, 2021
SkipTheDepot

Donate your bottles to us!

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CF Champions
CAMERON DAVIS
Age 18, Charlottetown (PEI)

Cameron Davis was given the ultimate opportunity. He was selected out of hundreds of athletes to carry the flag for P.E.I at the 2019 Canada Winter Games opening ceremony that took place in Red Deer, Alberta.

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