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Photo of Melissa, living with cystic fibrosis, and her children together in a corn field

Trikafta is coming to Canada

Read our FAQs and learn about our webinar series.

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OUR ADVOCACY WORK

Read the latest updates on advocacy.

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Q&A: COVID-19 and cystic fibrosis

We've consulted with cystic fibrosis clinicians to create a Q&A page about COVID-19 for the CF community

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Cystic Fibrosis Resource Guide 2019-2020

Back By Popular demand

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Blog & News

ADVOCACY‌‌ ‌‌UPDATES‌‌ ‌‌AND‌‌ ‌‌LATEST‌‌ ‌‌NEWS‌‌ ‌‌-‌‌ ‌‌MARCH 5

March 5, 2021

Blog

Learn about the progress of Trikafta through Canada’s drug review and reimbursement system, meet new members of the CF Canada advocacy team and get details of the support the cystic fibrosis community has received from elected officials - all in this week’s blog update.

Federal caucus open letter to health minister

AN OPEN LETTER TO THE FEDERAL HEALTH MINISTER

February 28, 2021

News

In a tremendous show of support for the cystic fibrosis community, an open letter to federal Health Minister, Patty Hadju, has been signed by 44 Members of Parliament from all political parties.

Update on COVID-19 vaccine prioritization for Canadians living with cystic fibrosis

February 2, 2021

News

In December of 2020, Dr. John Wallenburg, Chief Scientific Officer at Cystic Fibrosis Canada sent a letter to provincial Health Ministers urging provinces to prioritize Canadians living with cystic fibrosis (CF) and their caregivers, as they determine priority groups for the COVID-19 vaccination.

Upcoming Events

April 10, 2021

65 Roses Family Dance Party

Be our guest at the 65 roses family dance party!

Join us for the 65 Roses Family Dance Party taking place online on April 10th, 2021 at 6PM MST. Participants will tune in using a unique link sent to them before the event. We'll welcome you with sing-alongs, special character reveals, interactive activities, and enough toons to keep you movin’ and groovin’ all night long! Designed exclusively for kids ages 3 – 12, it will be a night your family won’t forget at the 65 Roses Family Dance Party!

For more information, please contact the Calgary & Southern Alberta Chapter of Cystic Fibrosis Canada at 403-266-5295 or email princessballyyc@cysticfibrosis.ca

Please visit https://65rosesprincessball.crowdchange.net/ to purchase tickets.

May 30, 2021

2021 Virtual Walk to Make CF History- Toronto District

Join us virtually for the 2021 Walk to Make Cystic Fibrosis History!

*See event listing for more details on the Toronto & District Walks*

View All Events

CF Champions

CAMERON DAVIS

Age 18, Charlottetown (PEI)

Cameron Davis was given the ultimate opportunity. He was selected out of hundreds of athletes to carry the flag for P.E.I at the 2019 Canada Winter Games opening ceremony that took place in Red Deer, Alberta.