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INESSS, QUEBEC’S COST EFFECTIVENESS REVIEW BODY, RELEASED A POSITIVE RECOMMENDATION TO FUND TRIKAFTA 6+

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Trikafta

CADTH releases final recommendation to fund Trikafta for 6+

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Jack Snarr

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People living with cystic fibrosis.

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Travel Tips for Cystic Fibrosis

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Canadians with cystic fibrosis consume a large number of enzymes, about 20 pills a day, to help absorb nutrients from food In 2020, 21 Canadians with cystic fibrosis had surgery for a lung transplant Of the Canadians with CF who died in the last three years, half were under 34 years of age
Upcoming Events
September 10, 2022
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Fairway Of Dreams

Fairway or Dreams Charity Golf Classic

Registration Deadline is Tuesday, September 6, 2022

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September 12, 2022
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65 Roses Ladies Golf Classic

On Monday, September 12, 2022 the 33rd Annual 65 Roses Ladies Golf Classic, in support of Cystic Fibrosis Canada, will take place at the exclusive Earl Grey Golf Club.

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CF Champions
Gillian Maramieri
Caledon, Ontario

Gillian Maramieri has been involved with Cystic Fibrosis Canada for 10 years and is a working mother of two boys. Her youngest, Matthew, has cystic fibrosis and was the first to be diagnosed with CF in the family. He was diagnosed at birth after Gillian’s doctors noticed an echogenic bowel 18 weeks into her pregnancy. Her first words after the diagnosis were, "Ok, now what do we need to do?"

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