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Tikafta survey

PATIENT SURVEY TO INFORM TRIKAFTA DRUG REVIEW

Do you live with CF or are you a parent, partner or caregiver to someone living with CF? Take our survey and include your voice in the review process for Trikafta. Survey closes January 26

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A LOOK AHEAD TO 2021

A LOOK AHEAD TO 2021

We’re hitting the ground running in 2021 and are excited to share our plans for the year. Accessing life changing medications will remain a key focus, as will improving quality of care, continuing vital research and offering support services. We also want to learn more about our community’s priorities so we can have meaningful impact. 

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ADVOCACY UPDATE & LATEST NEWS FROM CYSTIC FIBROSIS CANADA: JANUARY 8

ADVOCACY UPDATE & LATEST NEWS FROM CYSTIC FIBROSIS CANADA: JANUARY 8

Recent advocacy highlights from CF Canada include the rapid progress Trikafta is making through the Canadian drug review and reimbursement system, a soon to be launched patient input survey for the CADTH review and letters sent to provincial Health Ministers advocating for early access to COVID19 vaccines for people living with CF. 

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Over 4,300 Canadian children, adolescents and adults have CF 62% of all Canadians with cystic fibrosis are adults Of the Canadians with CF who died in the last three years, half were under 34 years of age
Upcoming Events
January 30, 2021
Capes & Crowns Virtually Enchanted

Capes & Crowns Virtually Enchanted

Raffles * 50/50

Purchase raffle tickets for your chance to win fabulous prizes or the 50/50 pot!

TICKETS ON SALE NOW!

https://cysticfibrosis.crowdchange.ca/1353

Draw date: Saturday, Jan 30 at 1-2pm

Don't wait - buy your tickets until 12:00 pm, Sat Jan 30

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January 31, 2021
SkipTheDepot

Donate your bottles to us!

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CF Champions
Tamy Mailly
Age 19, Montréal, Québec

With her sparkling eyes, gentle smile and joie de vivre, Tamy often leaves others in disbelief when they find out that she has cystic fibrosis.

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