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Spotlight on CF Research

Don’t miss our upcoming 2026 Spotlight on CF Research Webinar. Register now to hear Canadian experts discuss new research in diabetes, infections and mental health in the modulator era.

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Helping Canadians with CF live W/O Limits

We believe that no one who lives with cystic fibrosis should be left behind. As the national charity dedicated to improving the health and well-being of Canadians living with CF, we mobilize our community to address priority issues, advocate for improved access to medicine and resources, and fund targeted Canadian research that builds on our understanding of this rare disease to lessen its burden and, finally, find a cure.

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How you can create change

There are lots of ways to support Canadians living with cystic fibrosis, and a little help goes a long way.

donate

Donate to drive our life-changing work

Whether you chose to make a single or monthly donation, or arrange a planned gift, the simple act of giving creates positive, lasting change for the cystic fibrosis community.

fundraise

Register for, host or support a fundraiser

There’s always something going on in our community – and you’re invited! Be our guest at a local or national event, or host your own fun fundraiser in support of Cystic Fibrosis Canada.

volunteer

Volunteer to fit your schedule

We couldn’t have come as far as we have without our valued volunteers. There are as many reasons to volunteer with CF Canada as there are opportunities to do so.

New to Cystic Fibrosis Canada?

Welcome! Our community is a vibrant and supportive place to be, whether you live with cystic fibrosis, support someone who does, or you want to help change the CF story.

My child has been diagnosed

A new cystic fibrosis diagnosis can bring uncertainty and fear but there’s hope. Canadians with CF are living longer than ever before. Find the information and support you need.

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I am an adult living with CF

The world of cystic fibrosis is changing all the time. We’ve compiled the latest information on treatment and care, research and advocacy to help you in your CF journey.

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I want to learn about genetic testing

In most Canadian provinces and territories genetic testing is covered if the test is ordered by a physician and testing is indicated.

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I am a researcher interested in CF

We’ve funded cystic fibrosis research and inspired research careers for six decades. We invite new CF researchers to review our work and opportunities for funding.

For Researchers
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Stories from our community

We talk a lot about community because we are one. Which means there are people close by who know what you may be going through and who can support you. Just as you can do for others. BTW, every photo on this site is of a community member who has shared their story with us, for which we are grateful.

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Stan and his family supporting the Walk
Featured Story

Remembering Stan: A Family’s Decision to Give Back in His Honour

Discover how Stan’s family honoured his life with a memorial fundraiser in support of Cystic Fibrosis Canada and a future for those with CF.

A mother and son posing in a park, wearing purple t-shirts with a young woman's face on them.
Stories

A Mother’s Promise: Honouring Natalie Through Every Step

This May 31, join Mariette and countless other parents, loved ones, and supporters at our annual Walk To Make Cystic Fibrosis History.

Louise Taylor, CF Nurse
Stories

A Legacy of Care: Louise’s 40-Year Journey with the CF Community

When Louise began her nursing career at Toronto’s Hospital for Sick Children (SickKids) in 1982, she had no idea that cystic fibrosis (CF) would shape both her professional and personal life for decades to come.

The latest news

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Looking for CF info and support? We’re here to help

The Cystic Fibrosis Canada Helpline answers your non-urgent health questions about cystic fibrosis and connects you with vital community and government resources. Contact us by email at helpline@cysticfibrosis.ca or by phone at 1-800-378-2233 to speak with a member of our staff during business hours, Eastern Time.

Contact Us