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Volunteer Advocate

Blog & News

Photo of Shannon Price

Meet Shannon Price

My name is Shannon Price. I’m incredibly passionate about my wonderful family, my dogs Apple and Sammy, cooking, movies, music, reading, and being outdoors.

While all of these things fill my soul, they are interspersed around my daily cystic fibrosis (CF) treatments that are incredibly time consuming, but the very reason why I am still alive today. 

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Spring update from the CEO

Spring update from the desk of the CEO

As temperatures slowly warm and the days get a little longer, we at Cystic Fibrosis Canada are feeling more ready than ever to make positive change for our community.

We’re pushing further in every aspect of our work to achieve the progress the Canadian cystic fibrosis community needs and deserves.

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The Advocacy Brief


Welcome to the first issue of Cystic Fibrosis Canada’s newsletter dedicated to advocacy. We’ll bring you the latest news on accessing modulators in Canada, updates on Cystic Fibrosis Canada’s advocacy initiatives and details on how you can get involved. 

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Cystic fibrosis occurs when a child inherits two defective copies of the gene responsible for cystic fibrosis (one from each parent). Over 4,300 Canadian children, adolescents and adults have CF 65% of Canadians newly diagnosed with cystic fibrosis in 2019 were diagnosed through newborn screening
Upcoming Events
April 25, 2021
Outrun CF 2021

Durham's Outrun CF is going virtual again this year! Register today!

*See event listing for more details*

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April 30, 2021
Toronto & District Walks- Virtual Trivia Night

We are excited to announce that Ryerson's Engineering Spirit and Orientation Committee will be hosting a trivia game night for all Walk participants!

Join us for an opportunity to connect with our Toronto District Walk community, meet our local Shinerama team, win some prizes and have fun! 

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CF Champions
Tamy Mailly
Age 19, Montréal, Québec

With her sparkling eyes, gentle smile and joie de vivre, Tamy often leaves others in disbelief when they find out that she has cystic fibrosis.

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