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HEALTH CANADA APPROVAL SIGNALS SHIFT IN CF TREATMENT FOR NEWBORNS

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CADTH issues draft recommendation for Trikafta for 2-5 year olds

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Trikafta drug

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Cystic fibrosis occurs when a child inherits two defective copies of the gene responsible for cystic fibrosis (one from each parent). Canadians with cystic fibrosis consume a large number of enzymes, about 20 pills a day, to help absorb nutrients from food 73.5% of Canadians newly diagnosed with cystic fibrosis in 2019 were diagnosed through newborn screening
Upcoming Events
December 6, 2023
Volunteer Town Hall

YOU'RE INVITED!

Join us December 6th, 2023 at 7:00PM EST to bring our incredible volunteer community together for a Town Hall gathering.

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Dec 1st- Dec 24th 2023
Wrapping for a Cure - Calgary 2023

Get in the Holiday spirit by volunteering your time for a good cause! 

Cystic Fibrosis Canada is excited to announce the return of Wrapping for a Cure located in North Hill Centre & Southcentre Mall, Calgary, Alberta.

Individuals, teams, and workplace employees can give a little back during the Holiday season by volunteering to wrap gifts at any of our participating malls. Funds raised from Wrapping for a Cure go back into the local community.

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CF Champions
Nicki Perkins sitting on a bench smiling in a CrossFit gym with weights behind her.
Nicki Perkins
Nicki’s Fitness Journey: How CrossFit Changed my Life with Cystic Fibrosis

Nicki Perkins is a 50-year-old CrossFit trainer living with cystic fibrosis and 28% lung function.

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