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A young walker, smiling big.

THE 2022 CANADIAN CYSTIC FIBROSIS REGISTRY ANNUAL DATA REPORT

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Individual with CF and mother.

CYSTIC FIBROSIS CANADA CALLS ON PROVINCES AND TERRITORIES TO IMMEDIATELY EXPAND FUNDING OF TRIKAFTA FOR 2-5 YEAR OLDS

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HEALTH CANADA APPROVAL SIGNALS SHIFT IN CF TREATMENT FOR NEWBORNS

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Canadians with cystic fibrosis consume a large number of enzymes, about 20 pills a day, to help absorb nutrients from food 73.5% of Canadians newly diagnosed with cystic fibrosis in 2019 were diagnosed through newborn screening Of the Canadians with CF who died in the last three years, half were under 34 years of age
Upcoming Events
February 29, 2024
Face Off with CF Gala

We are excited to announce the 32ND Annual Face Off with CF Gala with Honourary Chairs Ryan & Breanne Nugent-Hopkins from the Edmonton Oilers!

Thursday, february 29th, 2024
Hot Stove Q&A with Ryan Nugent-Hopkins along with several Edmonton Oilers, Alumni and media personalities
Silent and Live Auction
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Ongoing
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CF Champions
Gillian Maramieri
Caledon, Ontario

Gillian Maramieri has been involved with Cystic Fibrosis Canada for 10 years and is a working mother of two boys. Her youngest, Matthew, has cystic fibrosis and was the first to be diagnosed with CF in the family. He was diagnosed at birth after Gillian’s doctors noticed an echogenic bowel 18 weeks into her pregnancy. Her first words after the diagnosis were, "Ok, now what do we need to do?"

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