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OUR ADVOCACY WORK

Read the latest updates on advocacy.

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Q&A: COVID-19 and cystic fibrosis

We've consulted with cystic fibrosis clinicians to create a Q&A page about COVID-19 for the CF community

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Cystic Fibrosis Resource Guide 2019-2020

Back By Popular demand

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Photo of Ron Jobbagy, his wife Sheryl and their son Dylan, who lives with cystic fibrosis

You can go further for cystic fibrosis

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Blog & News

Meet Shannon Price

April 3, 2021

Blog

My name is Shannon Price. I’m incredibly passionate about my wonderful family, my dogs Apple and Sammy, cooking, movies, music, reading, and being outdoors.

While all of these things fill my soul, they are interspersed around my daily cystic fibrosis (CF) treatments that are incredibly time consuming, but the very reason why I am still alive today.

Spring update from the desk of the CEO

March 31, 2021

News

As temperatures slowly warm and the days get a little longer, we at Cystic Fibrosis Canada are feeling more ready than ever to make positive change for our community.

We’re pushing further in every aspect of our work to achieve the progress the Canadian cystic fibrosis community needs and deserves.

ADVOCACY THE ADVOCACY BRIEF – ISSUE #1

March 30, 2021

Blog

Welcome to the first issue of Cystic Fibrosis Canada’s newsletter dedicated to advocacy. We’ll bring you the latest news on accessing modulators in Canada, updates on Cystic Fibrosis Canada’s advocacy initiatives and details on how you can get involved.

Upcoming Events

April 25, 2021

Outrun CF 2021

Durham's Outrun CF is going virtual again this year! Register today!

*See event listing for more details*

April 30, 2021

Toronto & District Walks- Virtual Trivia Night

We are excited to announce that Ryerson's Engineering Spirit and Orientation Committee will be hosting a trivia game night for all Walk participants!

Join us for an opportunity to connect with our Toronto District Walk community, meet our local Shinerama team, win some prizes and have fun!

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CF Champions

CAMERON DAVIS

Age 18, Charlottetown (PEI)

Cameron Davis was given the ultimate opportunity. He was selected out of hundreds of athletes to carry the flag for P.E.I at the 2019 Canada Winter Games opening ceremony that took place in Red Deer, Alberta.