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Mental Health

Mood, emotion, temperament these are words to describe how you are feeling both in the moment and, more importantly, how you are feeling overall. In the cystic fibrosis (CF) clinic, physicians, nurses, physiotherapists and dietitians ask about your physical health – “How you are breathing, sleeping, eating, and completing your treatments?” An equally important inquiry is “How are you feeling?”

Mental health and emotional wellness is an integral and essential component of health. It is a state of well-being in which an individual realizes his or her abilities to cope with the normal stresses of life. The individual is able to work productively and make a contribution to his or her community.

The World Health Organization (WHO)1 constitution states: “Health is a state of complete physical, mental and social well-being and not merely the absence of disease or infirmity.”

Research has shown that people with chronic diseases (defined as a condition that persists for longer than three months) can often have anxiety and depression. It is estimated that up to one third of individuals with a serious medical condition will experience depression. Depression is one of the most common complications of chronic illnesses like cystic fibrosis.

As an individual with CF, it's important to be aware of this and ensure that you identify and communicate these feelings so that you can receive support.

Adolescents and adults may experience occasional periods of feeling down. For some individuals with a good support network, these feelings can improve. For others, symptoms may occur over prolonged periods of time and feelings of self-doubt and sadness may become overwhelming.

Depression is identified by a variety of symptoms. If you have five or more of the following symptoms present over a two week period, it’s important that you consult your health care provider. He/she will ask you questions about your wellbeing and overall mood.

Another common mental health concern that may, or may not, accompany depression is anxiety. Anxiety is a feeling of worry that may include nervousness or agitation. Everyone may experience this on a short term basis, but prolonged feelings of anxiety, may lead to cognitive, physical and behavioural symptoms.

One of the most common forms of anxiety is Generalized Anxiety Disorder (GAD). GAD is defined as excessive anxiety and worry i.e. apprehensive expectation, occurring more days than not for at least six months. It could relate to, a number of events or activities such as work or school performance. The individual is unable to control the worry and the anxiety, GAD is associated with at least three of the following six symptoms:

The anxiety, worry, or physical symptoms cause clinically significant distress or impairment in social, occupational or other important areas of functioning2.

Similar to depression, it is important to consult your health care practitioner if you feel you are developing symptoms of GAD. Prolonged worry or anxiety can affect your ability to complete tasks. Appropriate help can ensure you have the tools to assist with day to day stress.

The good news is you don’t have to deal with these problems on your own. There are many resources available to help you. In addition to the resources listed below, your CF team can guide you to professionals who can help link you to counselors, psychiatrists, psychologists and social workers.

For mental health and emotional wellness resources that are COVID-19 related, visit our mental health and wellness COVID-19 webpage.

Resources

Mood Disorders Society of Canada has developed a website dedicated to raising awareness and sharing information about depression. They have a wealth of information available to help identify and manage depression.  

Learn more about depression and find some mental health resources at https://depressionhurts.ca/en/

If you’re in imminent danger, call 911.  

If you or a loved one is having suicidal thoughts, there are many crisis centres available 24 hours a day to talk to you. Call the helpline listed below or contact your closest crisis center for assistance.  

Canadian adults: 1-833-456-4566 

Quebec residents: 1-866-277-3553 

Kids Help Phone: 1-800-668-6868 

Learn more about suicide prevention and find supports at https://suicideprevention.ca/help-and-information/  

The Canadian Mental Health Association (CMHA) facilitates access to the programs, services and supports people require for mental health and emotional wellness. CMHA manages a free, skill-building program, BounceBack, that is designed to help adults and youth aged 15+ manage depression, anxiety, and overall emotional wellness.  

Learn more about CMHA’s services and BounceBack at https://cmha.ca/

Anxiety Canada provides self-help resources, articles, videos, interactive tools, podcasts, and apps for adults, youth, and children living with anxiety.  

Learn more about the services you can benefit from at https://www.anxietycanada.com/

The Antidepressant Skills Workbook was developed based on scientific research, and is intended for people with depressed moods, and concerned parents, family or friends who want to help a depressed individual.  

Download the Antidepressant Skills Workbook, for you or a loved on, in your preferred language at https://psychhealthandsafety.org/asw  

For more information and supports available to you, nation-wide and provincially, view the mental health and emotional wellness sections of our community resource guide.

If you have depression or anxiety reach out to a health care professional today!

1 Mental Health.” World Health Organization. Web. 30 May 2014

2 Diagnostic and statistical manual of mental disorders: DSM-5. 5th ed. Washington, D.C.: American Psychiatric Association, 2013.

Contributions from: Dr. Harvey Rabin, MD FRCPC, Lisa Smith, RN, BScN, MSc and Ena Gaudet RN, BScN.

Need more information? Contact us at helpline@cysticfibrosis.ca