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Volunteer Advocate

Parenting with CF

Adults with cystic fibrosis (CF) are living longer and having children of their own, which is a testament to how far CF care has come in Canada. Being a parent is challenging, let alone being a parent while managing a complex medical condition. That is why Cystic Fibrosis Canada and our Adult Cystic Fibrosis Advisory Committee (ACFAC) is committed to providing more resources and support to adults with cystic fibrosis.

With the ACFAC we designed and developed the resource, Parenting When You Have Cystic Fibrosis, to help support you while being a parent and living with cystic fibrosis. As a complement to the resource, the ACFAC has also developed an activity book for children whose parents live with cystic fibrosis called Keepin’ It Rosy – When Your Parent has Cystic Fibrosis: An Activity Book. It is recommended that you print the activity book to fill in the activities and exercise.

AN INTRODUCTORY VIDEO: HOW TO USE THE GUIDE

We spoke with Megan Parker, a mom of two who lives with cystic fibrosis, and the Chair of our Adult Cystic Fibrosis Advisory Group, about the Parenting When You Have Cystic Fibrosis guide, how best to use it and how to get the most out of the activity booklet. 


Ask the Experts Webinar: Parenting with CF

We held our Ask the Experts Webinar: Parenting with cystic fibrosis on Thursday, December 2, with experts Dr. Heather Switzer, Senior Child Psychologist, Hilary Power, Clinical Psychology Doctoral Student, Megan Parker, chair of the Adults with Cystic Fibrosis Advisory Committee and parent living with cystic fibrosis and, Rob Burtch, spokesperson, advocate and parent living with cystic fibrosis. During the session, experts discussed the joys, challenges and reality of parenting while managing a complex medical condition.

Need more information? Contact us at helpline@cysticfibrosis.ca