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Volunteer Advocate

Resources

Information requests and referrals service 

Cystic Fibrosis Canada has an information requests and referrals service in place to help you find the resources you are looking for. We help connect individuals to community and government resources. In addition to the resources provided below, you may contact us directly with queries pertaining to CF resources and disability supports.

We look forward to helping you find the information, referral, service, program and support you are seeking. Contact us by email at advocacy@cysticfibrosis.ca or by phone at 1-800-378-2233 ext. 403 to speak with Eunice, Coordinator, Community Relations and Resources.

 

Patient and caregiver Resources

The Canadian Guide to Nutrition and CF
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Pre-Pregnancy Nutrition Guidelines for Women with CF
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Healthy Nutrition for CF
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Healthy Diet, Healthy Fats
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Vitamins and CF
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G-Tube Feeding
Download
Enzyme Guidelines for Children with CF
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Enzyme Guidelines for Adults with CF
Download
Preventing Dehydration in Babies with CF
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Preventing Dehydration in Adults with CF
Download
Your Bone Health
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Exercise Guidelines for CF
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What you should know about CFRD
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Impaired Glucose Tolerance
Download
Distal Intestinal Obstruction Syndrome (DIOS) in Children
Download
Distal Intestinal Obstruction Syndrome (DIOS) in Adults
Download
Lung Transplantation and CF
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Mental Health
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The section includes CF health related resources that can help you better understand and manage CF care. If you have specific questions or health concerns for a particular case, please contact the CF clinic for medical advice. 

Education and CF: Information for Teachers and Professors
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School Toolkit: A Guide for Teachers and Parents
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This section includes tools that outline key considerations and information about CF and school. You will also find supports for people with CF and their families/caregivers that are interested in pursuing a higher education included.

This section will include information on employment assistance and financial supports such as employment insurance benefits and the disability tax credit. While we work to have said resources available, please feel free to contact us with any queries by email at advocacy@cysticfibrosis.ca or by phone at 1-800-378-2233 ext. 403.

Travel Tips for Cystic Fibrosis
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This section includes resources and supports that are relevant to travel, whether it is for vacation or immigration to Canada. 

Teen Sexuality and Cystic Fibrosis
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Sexuality, Fertility and Cystic Fibrosis for Adults
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This section consists of resources that are relevant to people with CF that are transitioning from paediatric to adult clinic care. The CF health section above also includes resources to help you better understand and manage CF care. If you have specific questions or health concerns for a particular case, please contact your CF clinic for medical advice.

Cystic fibrosis in Canada
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Your child and CF
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How to keep a food intake record
Download
Cystic Fibrosis and Summer Care Tips
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