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About Us


Since being founded by parents in 1960, Cystic Fibrosis Canada has dramatically changed the cystic fibrosis (CF) story.

We are a national not-for-profit corporation and one of the world’s top three charitable organizations committed to improving and lengthening the lives of people living with cystic fibrosis.

In our 60 year history, we have advanced cystic fibrosis research and care that has more than doubled life expectancy for Canadians living with cystic fibrosis. We’ve contributed to the global body of CF knowledge, funding research achievements such as mapping the gene that causes cystic fibrosis, in 1989. And we’ve advanced access to life-changing CF medicines in Canada through relentless advocacy and government relations work.

Today, Cystic Fibrosis Canada is a leading organization with a central role engaging people living with cystic fibrosis, parents and caregivers, volunteers, researchers and healthcare professionals, government and donors. We work together to change lives through treatments, research, information and support. 

Despite our remarkable progress together, we are not yet done. Not when half of the Canadians with cystic fibrosis who died in the past five years were under the age of 37. We are pushing further!

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Six decades ago, Cystic Fibrosis Canada was created through the courage and vision of caring parents. We’ve come so far since then, and we’re pushing even Further. That’s why we’re running an exciting new campaign: Further.

Over the years, Cystic Fibrosis Canada has helped drive revolutionary change. Today it’s a different world for people living with cystic fibrosis. We’ve made a huge difference, and now is the moment we must recommit to our goal and keep driving forward.

We have made a pledge to go even Further.

Further is what fuels us. We will go Further in accessing critical medicines. Further in fueling innovative research. Further in ensuring the care and support needed is available. Further in our fundraising. Further to lengthen life-spans and improve lives.

And most importantly of all, we will keep pushing, keep going Further until all people with cystic fibrosis can and do experience everything life has to offer — and enjoy everything life has to offer.

Together we will continue to change the cystic fibrosis story. We will go Further.



To end cystic fibrosis. We will help all people living with cystic fibrosis by funding targeted world-class research, supporting and advocating for high-quality individualized cystic fibrosis care and raising and allocating funds for these purposes.


A world without cystic fibrosis.


Cystic Fibrosis Canada is committed to our four core values:

Excellence starts with the belief that striving for the ultimate solution or goal is the only path worth following. By challenging the status quo, we are dedicated to achieving or surpassing all of our goals in support of creating a better future for Canadians with CF.

Accountability means we are committed to financial stewardship with, and for, all stakeholders of Cystic Fibrosis Canada by providing proper governance in relation to our policies and charters. Our organization is well managed, a great place to work, volunteer, or invest in and we always deliver results to the Canadians with CF we are trying to help.

Teamwork gives an integrated and united front that speaks as one voice with common goals. We value and are committed to building strong relationships with all of our partners, including volunteers, corporate partners, employees, donors, researchers and clinicians. 

Caring allows us to provide an encouraging and supportive environment that will inspire the best possible care, treatment and research for Canadians living with CF.