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Cystic Fibrosis Canada Blog Hub

Canada’s cystic fibrosis community is a vibrant place to be. People living with CF, family members, carers, clinicians, scientists, donors and volunteers contribute enormously to helping people of all ages live without limits. We thank all those who've shared their story and invite you to get to know our community in the blog posts below.
Let us know if you want to share your story.

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In The Community

Celebrating Excellence in CF Nursing: Ena Gaudet

This year, Ena’s dedication has been recognized with Cystic Fibrosis Canada’s 2025 Taylor Nursing Award for Continuing Education, an honour established through the generosity and leadership of Louise Taylor, former CF Clinic Nurse Coordinator at The Hospital for Sick Children in Toronto.

Oct 8, 2025
A large group of CF Conference attendees gather on the steps of the conference ballroom in Calgary.
CF Canada

From Clinics to Community: Highlights from the CF Canada Conference

Nearly 200 CF clinicians gathered in Calgary to shape new care guidelines and strengthen collaboration across Canada’s cystic fibrosis community.

Sep 25, 2025
In The Community

Carrying on a Legacy: The Gallivan CF Golf Tournament 

For more than four decades, the Gallivan CF Golf Tournament has stood as a shining example of what happens when a community comes together with love, purpose, and determination.

Sep 24, 2025
A pregnant woman smiling in a field.
Stories

One More Breath: Audrey’s Journey with Cystic Fibrosis and Mental Health

From the outside, 25-year-old Audrey’s life in Sorel-Tracy, Quebec, might seem full of light. But behind the moments of joy is a lifelong battle with cystic fibrosis – one that has tested not only her body, but her mind. Read more and learn how you can help expand mental health resources for people living with CF.

Sep 17, 2025
A young father cradles his infant son who is using a nebulizer.
CF Canada

65 Years Strong, But Our Story Is Far From Over 

Sixty-five years ago, a group of determined parents refused to accept that cystic fibrosis (CF) was a death sentence for their children. Today, Cystic Fibrosis Canada stands as a testament to what unwavering commitment can achieve. 

Sep 15, 2025
Research

Pregnancy Outcomes in Women with Cystic Fibrosis: A New Canadian Study 

As more women with cystic fibrosis (CF) are choosing to start families, understanding how pregnancy and birth outcomes compare to the general population is becoming increasingly important. At a national level, this topic has been largely unexplored due to very limited data being available. Now, a new research study published in the Journal of Obstetrics and Gynecology Canada (JOGC), helps to fill this gap.  

Sep 8, 2025
A smiling woman laying on a hospital bed holding a thumbs up.
Stories

Living with Cystic Fibrosis: Kiley’s Story of Strength, Survival, and Mental Health

Kiley, 21, spends her time journaling and working at a local pub—all while trying to deal with the mental challenges of cystic fibrosis (CF). Read more and learn how you can help expand mental health resources for people living with CF.

Sep 2, 2025
Lauren standing on a beach in front of the blue water
Stories

Why Access to Trikafta is About More Than Medicine: Lauren’s Story

For the past two years, Lauren has been hospital-free – a milestone she never imagined possible before starting Trikafta. Now in the final year of her teacher education program, Lauren dreams of inspiring students.

Aug 25, 2025
In The Community

Running for a Future Without Limits: The Defibrose 2026 Experience

With the Kenya Experience on the horizon and two determined teenagers at the starting line, the Defibrose team is once again proving that no distance is too far when it comes to fighting for a better future.

Aug 22, 2025
Living with CF

“No one should go into debt to stay alive.” – Why your voice matters for people with Cystic Fibrosis 

Aug 19, 2025
Teresa Weger in an open prairie field
Stories

“I just want to live a full life:” Teresa Weger on Rare Mutations, Resilience, and the Push for Progress

Living with a rare cystic fibrosis mutation and no access to Trikafta, Teresa Weger opens up about the realities of CF, her advocacy work, and why continued research is essential.

Jul 31, 2025
CF Canada

Spotlight on CF Research Webinar: recap and Q&A 

On June 18th, Cystic Fibrosis Canada hosted the second annual virtual Community Forum, themed, “Spotlight on CF Research”.  In case you missed the webinar, we’re recapping what was discussed and sharing the Q&As from our stellar lineup of Canadian cystic fibrosis researchers. 

Jul 29, 2025