Skip To Content
Volunteer Advocate
cf insights cf insights
National Cystic Fibrosis Awareness month photo with volunteer silhouettes

It’s Cystic Fibrosis Awareness Month!

This week marks the start of a special time of year for us as May is Cystic Fibrosis Awareness Month. This is a time to…

View Full Post

Thank You to our Volunteers

During National Volunteer Week, we recognize and are thankful for the many ways our volunteers contribute, driving progress for people in Canada impacted by cystic…

View Full Post
Ian Thompson's Meet the team blog header photo

Meet the Team: Ian Thompson

Meet Ian: a father, amateur golfer, angler, and political junkie. Ian and his wife, Donna, lost their two children to cystic fibrosis (CF). Years after…

View Full Post
CF Canada researcher holding up two test tubes

Community Reviewers help Cystic Fibrosis Canada Fund New Research

One of the guiding principles of Cystic Fibrosis Canada’s Strategic Plan is to ensure that our work resonates with the Canadian cystic fibrosis (CF) community….

View Full Post
Advocate Amanda with Trikafta

Advocate Spotlight – Amanda Bartels

Name: Amanda BartelsProvince: AlbertaConnection to CF: Woman (wife and mom) with CFYears advocating: Advocating for just over 2 years Why did you get involved with…

View Full Post

Meet Arash

I grew up in Iran in a warm and friendly home with my parents, sister, and twin brother. Both my brother and I were diagnosed…

View Full Post

The cystic fibrosis gene discovery is a Nobel Prize worthy discovery 

On Tuesday May 9, 1989, Cystic Fibrosis Canada-funded researcher, Dr. Lap-Chee Tsui, and his team at the Hospital for Sick Children in Toronto, together with…

View Full Post
Maggie McIlwaine Meet the Team banner

Meet the Team: Maggie McIlwaine

Meet Maggie: an avid traveler with a passion for the outdoors, and a 48-year history working in cystic fibrosis (CF) clinics. Since her time working…

View Full Post
access to medicines banner

The Advocacy Brief – Issue #9

Welcome to your February 1, 2022, edition of The Advocacy Brief. Updates on Access to Trikafta Looking ahead to 2022 2022 is shaping up to…

View Full Post