Explained: the PMPRB’s impact on access to CF medicines and what you can do to help
The Patented Medicine Prices Review Board (PMPRB) and its proposed draft guidelines have become a major concern in the Canadian cystic fibrosis (CF) community. This…
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Advocacy Update & Latest News from Cystic Fibrosis Canada: July 10
Please see below for the latest news and advocacy updates from Cystic Fibrosis Canada this week: #CFCantWait: ADVOCACY UPDATES Cystic Fibrosis Canada’s Position on the…
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Advocacy Update & Latest News from CF Canada: June 26
As more provinces are beginning to reopen as a part of the COVID-19 provincial reintegration plans, we hope that you are staying safe and well….
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From the Desk of the CEO
It has been an eventful few weeks and we are seeing positive momentum in our fight for access to cystic fibrosis (CF) medications thanks to…
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Faces of a Clinical Trial – Jenna Coombs
Name: Jenna Coombs Province you live in: New Brunswick How many clinical trials have you participated in: 1 Describe yourself in one word:…
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pCPA Negotiations for CF Modulators: What Does this Mean for Access?
The pCPA has agreed to begin negotiations with Vertex Pharmaceuticals? What does that mean? This means the public drug plans – those provided by the…
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Advocacy Update & Latest News from CF Canada: May 29
It’s the last week of CF Awareness Month! We hope you are staying safe and well. Here’s a round-up of the latest advocacy updates and…
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Walking with a Purpose
My name is Karen Danelisky, and I live in Thunder Bay, Ontario. I don’t have cystic fibrosis (CF), but I do have many friends and…
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Advocacy Update & Latest News from CF Canada: May 22
Please see below for advocacy updates and the latest news from Cystic Fibrosis Canada this week: #CFCantWait: ADVOCACY UPDATES Constituency Member of Parliament Meeting Challenge…
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