Matthew and Melissa Smith: Going Further for Leroy
My name is Melissa Smith, I’m a registered nurse and my husband, Matthew, is a photojournalist. We have two wonderful children – our son Leroy,…
Read More
Advocacy updates and latest news - February 12
Trikafta review timeline updates Trikafta continues through the Canadian drug review & reimbursement process, currently under review with Health Canada, CADTH and INESSS. CADTH has…
Read More
Advocacy updates and latest news – January 29
Read the latest advocacy updates from Cystic Fibrosis Canada. Trikafta Review: Making CF Voices Heard Thanks to all of you who filled out our community…
Read More
Patient Survey to Inform Trikafta Drug Review
As the life changing cystic fibrosis medicine, Trikafta, continues to rapidly move through Canada’s drug review and reimbursement system, Cystic Fibrosis Canada is conducting a…
Read More
A look ahead to 2021
It is with optimism that we welcome the year 2021. With this new year comes our renewed pledge to go even further for people living with…
Read More
ADVOCACY UPDATE & LATEST NEWS FROM CYSTIC FIBROSIS CANADA: JANUARY 8
CFCANTWAIT: ADVOCACY UPDATES Rapid Review of Trikafta In Progress Trikafta has been formally accepted for review by Health Canada and their website has been updated…
Read More
Advocacy Update & Latest News from Cystic Fibrosis Canada: December 11
#CFCANTWAIT ADVOCACY NEWS Trikafta submission update A senior Health Canada official confirmed on a CF Canada webinar that as of December 4, 2020, Health Canada…
Read More
For a lifetime of treasured moments
When living with a rare and fatal disease like cystic fibrosis (CF), simple moments of joy are extra special. As a result of generous donor…
Read More
Advocacy Update & Latest News from Cystic Fibrosis Canada: November 21
Please see below for the latest news and advocacy updates from Cystic Fibrosis Canada this week: #CFCantWait: ADVOCACY UPDATES Trikafta to be Submitted to Health…
Read More